{"id":2691,"date":"2024-08-09T14:03:17","date_gmt":"2024-08-09T14:03:17","guid":{"rendered":"https:\/\/transparency.com.al\/?p=2691"},"modified":"2024-08-09T14:03:19","modified_gmt":"2024-08-09T14:03:19","slug":"alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi","status":"publish","type":"post","link":"https:\/\/old.transparency.com.al\/en\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/","title":{"rendered":"Alarm! Pacient\u00ebt me leukemi dhe s\u00ebmundje terminale, me mungesa t\u00eb theksuara mjekimi!"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

Shoqata \u201cTogether for Life\u201d \u00ebsht\u00eb p\u00ebrballur dit\u00ebt e fundit me nj\u00eb fluks ankesash p\u00ebr munges\u00ebn e  mjekimit sipas protokolleve nga pacient\u00ebt q\u00eb vuajn\u00eb nga s\u00ebmundje t\u00eb r\u00ebnda si leukemi dhe s\u00ebmundje t\u00eb tjera tumorale. Pas marrjes s\u00eb ankesave, TFL nisi verifikimin n\u00eb terren t\u00eb situat\u00ebs, ku u njoh me nj\u00eb gjendje alarmante nga mungesa e barnave jetike p\u00ebr s\u00ebmundje t\u00eb r\u00ebnda, t\u00eb cilat duhet t\u00eb sigurohen dhe\/ ose rimbursohen nga sistemi sh\u00ebndet\u00ebsor publik.<\/p>\n\n\n\n

\u201cN\u00ebna ime vuan nga leukemia dhe nd\u00ebr t\u00eb tjera trajtohet me preparatin Tasigna. Ky lloj ila\u00e7i \u00ebsht\u00eb jet\u00ebsor p\u00ebr t\u00eb dhe nuk mund t\u00eb mungoj\u00eb m\u00eb shume se 1 jav\u00eb, ndryshe gjendja p\u00ebrkeq\u00ebsohet dhe ajo rrezikon jet\u00ebn. Na informuan q\u00eb medikamenti mungon dhe askush nuk p\u00ebrgjigjet se kur do t\u00eb vij\u00eb<\/em>\u201d, deklaroi p\u00ebr TFL familjari i nj\u00eb pacienti.

Munges\u00ebn e k\u00ebtij preparati e kan\u00eb denoncuar edhe pacient\u00eb t\u00eb tjer\u00eb me leukemi, t\u00eb cil\u00ebt jan\u00eb paraqitur k\u00ebto dit\u00eb pran\u00eb Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe jan\u00eb p\u00ebrballur me k\u00ebt\u00eb munges\u00eb. P\u00ebr pacient\u00ebt \u00ebsht\u00eb e pamundur ta sigurojn\u00eb vet\u00eb k\u00ebt\u00eb bar, i cili, jo vet\u00ebm \u00ebsht\u00eb shum\u00eb i kushtuesh\u00ebm, por edhe nuk gjendet n\u00eb asnj\u00eb farmaci tjet\u00ebr p\u00ebrve\u00e7 asaj spitalore, q\u00eb duhet t\u2019ua v\u00ebr\u00eb n\u00eb dispozicion falas t\u00eb s\u00ebmur\u00ebve.<\/p>\n\n\n\n

Po ashtu, shum\u00eb shqet\u00ebsuese paraqitet edhe gjendja e pacient\u00ebve q\u00eb vuajn\u00eb nga s\u00ebmundje tumorale, t\u00eb cil\u00ebt prej jav\u00ebsh po p\u00ebrballen me munges\u00ebn e barnave kryesore, si fulvestrnt, gemzar dhe paclitaxel.<\/p>\n\n\n\n

TFL ngre alarmin p\u00ebr k\u00ebt\u00eb situat\u00eb, pasi mungesa e trajtimit me medikamentet e duhura sipas protokolleve t\u00eb pacient\u00ebve me s\u00ebmundje terminale rrezikon seriozisht jet\u00ebn e  tyre, dhe k\u00ebrkon me forc\u00eb marrjen e masave t\u00eb menj\u00ebhershme p\u00ebr sigurimin e medikamenteve dhe trajtimin e pacient\u00ebve sipas protokolleve.<\/p>\n\n\n\n

Duam t\u00eb theksojm\u00eb se zbatimi i Ligjit p\u00ebr Kujdesin Sh\u00ebndet\u00ebsor n\u00eb Republik\u00ebn e Shqip\u00ebris\u00eb detyron institucionet sh\u00ebndet\u00ebsore si Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d t\u2019u sigurojn\u00eb pacient\u00ebve sh\u00ebrbim cil\u00ebsor t\u00eb vazhduesh\u00ebm dhe n\u00eb p\u00ebrputhje me protokollet e miratuara.<\/p>\n\n\n\n

M\u00eb shum\u00eb se nj\u00eb her\u00eb TFL e ka ngritur z\u00ebrin n\u00eb mb\u00ebshtetje t\u00eb t\u00eb drejtave t\u00eb pacient\u00ebve p\u00ebr sh\u00ebrbim cil\u00ebsor dhe ka denoncuar institucionet p\u00ebrgjegj\u00ebse p\u00ebr munges\u00ebn e cil\u00ebsis\u00eb n\u00eb sh\u00ebrbime. Kauzat e pacient\u00ebve p\u00ebr mjekim t\u00eb drejt\u00eb dhe t\u00eb bazuar n\u00eb protokolle, Shoqata Together for Life i ka ndjekur n\u00eb t\u00eb gjitha instancat, nga QSUNT, Ministria e Sh\u00ebndet\u00ebsis\u00eb, Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi dhe deri n\u00eb Gjykat\u00eb. Tashm\u00eb jan\u00eb disa \u00e7\u00ebshtje t\u00eb fituara n\u00eb gjykat\u00eb ndaj Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb, e cila \u00ebsht\u00eb detyruar jo vet\u00ebm t\u00eb siguroj\u00eb medikamentet e munguara p\u00ebr pacient\u00eb me talasemi dhe me kancer gjiri, por edhe t\u2019i d\u00ebmshp\u00ebrblej\u00eb ata p\u00ebr d\u00ebmin shkaktuar sh\u00ebndetit t\u00eb tyre si pasoj\u00eb e munges\u00ebs s\u00eb trajtimit t\u00eb duhur. (https:\/\/mailchi.mp\/b0e42dfc9db4\/the-court-compensates-the-patient-with-hemophilia-together-for-life-represented-the-case-in-trial-2124509<\/a>; https:\/\/www.togetherforlife.org.al\/en\/tfl-fiton-betejen-e-pare-gjyqesore-ne-mbrojtjen-e-pacienteve\/<\/a>) <\/p>\n\n\n\n

TFL i b\u00ebn thirrje Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe n\u00eb ve\u00e7anti ministres Albana Ko\u00e7iu q\u00eb t\u00eb nd\u00ebrhyj\u00eb menj\u00ebher\u00eb p\u00ebr t\u00eb adresuar k\u00ebt\u00eb situat\u00eb kritike dhe p\u00ebr t\u00eb marr\u00eb masa q\u00eb garantojn\u00eb q\u00eb asnj\u00eb pacient t\u00eb mos p\u00ebrballet me nd\u00ebrprerje t\u00eb trajtimit p\u00ebr shkak t\u00eb munges\u00ebs s\u00eb medikamenteve. P\u00ebr m\u00eb tep\u00ebr, k\u00ebrkojm\u00eb q\u00eb t\u00eb kryhet nj\u00eb hetim i plot\u00eb p\u00ebr t\u00eb p\u00ebrcaktuar arsyet e munges\u00ebs dhe t\u00eb sigurohet q\u00eb nj\u00eb situat\u00eb e till\u00eb t\u00eb mos p\u00ebrs\u00ebritet n\u00eb t\u00eb ardhmen.<\/p>\n\n\n\n

Gjithashtu, Together for Life siguron se do t\u00eb jet\u00eb n\u00eb krah\u00eb t\u00eb pacient\u00ebve n\u00eb k\u00ebt\u00eb betej\u00eb dhe, ashtu si edhe m\u00eb par\u00eb, n\u00eb munges\u00eb t\u00eb nj\u00eb reagimi nga ana e MSHMS dhe institucioneve t\u00eb tjera, do t\u00eb ndjek\u00eb t\u00eb gjitha hallkat e sistemit p\u00ebr t\u00eb k\u00ebrkuar t\u00eb drejt\u00ebn e tyre deri n\u00eb p\u00ebrballje ligjore me cilindo p\u00ebrgjegj\u00ebs p\u00ebr k\u00ebt\u00eb situat\u00eb.<\/p>","protected":false},"excerpt":{"rendered":"

Shoqata \u201cTogether for Life\u201d \u00ebsht\u00eb p\u00ebrballur dit\u00ebt e fundit me nj\u00eb fluks ankesash p\u00ebr munges\u00ebn e  mjekimit sipas protokolleve nga pacient\u00ebt q\u00eb vuajn\u00eb nga s\u00ebmundje t\u00eb r\u00ebnda si leukemi dhe s\u00ebmundje t\u00eb tjera tumorale. Pas marrjes s\u00eb ankesave, TFL nisi verifikimin n\u00eb terren t\u00eb situat\u00ebs, ku u njoh me nj\u00eb gjendje alarmante nga mungesa e barnave jetike p\u00ebr s\u00ebmundje t\u00eb r\u00ebnda, t\u00eb cilat duhet t\u00eb sigurohen dhe\/ ose rimbursohen nga sistemi sh\u00ebndet\u00ebsor publik. \u201cN\u00ebna ime vuan nga leukemia dhe nd\u00ebr t\u00eb tjera trajtohet me preparatin Tasigna. Ky lloj ila\u00e7i \u00ebsht\u00eb jet\u00ebsor p\u00ebr t\u00eb dhe nuk mund t\u00eb mungoj\u00eb m\u00eb shume se 1 jav\u00eb, ndryshe gjendja p\u00ebrkeq\u00ebsohet dhe ajo rrezikon jet\u00ebn. Na informuan q\u00eb medikamenti mungon dhe askush nuk p\u00ebrgjigjet se kur do t\u00eb vij\u00eb\u201d, deklaroi p\u00ebr TFL familjari i nj\u00eb pacienti. Munges\u00ebn e k\u00ebtij preparati e kan\u00eb denoncuar edhe pacient\u00eb t\u00eb tjer\u00eb me leukemi, t\u00eb cil\u00ebt jan\u00eb paraqitur k\u00ebto dit\u00eb pran\u00eb Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe jan\u00eb p\u00ebrballur me k\u00ebt\u00eb munges\u00eb. P\u00ebr pacient\u00ebt \u00ebsht\u00eb e pamundur ta sigurojn\u00eb vet\u00eb k\u00ebt\u00eb bar, i cili, jo vet\u00ebm \u00ebsht\u00eb shum\u00eb i kushtuesh\u00ebm, por edhe nuk gjendet n\u00eb asnj\u00eb farmaci tjet\u00ebr p\u00ebrve\u00e7 asaj spitalore, q\u00eb duhet t\u2019ua v\u00ebr\u00eb n\u00eb dispozicion falas t\u00eb s\u00ebmur\u00ebve. Po ashtu, shum\u00eb shqet\u00ebsuese paraqitet edhe gjendja e pacient\u00ebve q\u00eb vuajn\u00eb nga s\u00ebmundje tumorale, t\u00eb cil\u00ebt prej jav\u00ebsh po p\u00ebrballen me munges\u00ebn e barnave kryesore, si fulvestrnt, gemzar dhe paclitaxel. TFL ngre alarmin p\u00ebr k\u00ebt\u00eb situat\u00eb, pasi mungesa e trajtimit me medikamentet e duhura sipas protokolleve t\u00eb pacient\u00ebve me s\u00ebmundje terminale rrezikon seriozisht jet\u00ebn e  tyre, dhe k\u00ebrkon me forc\u00eb marrjen e masave t\u00eb menj\u00ebhershme p\u00ebr sigurimin e medikamenteve dhe trajtimin e pacient\u00ebve sipas protokolleve. Duam t\u00eb theksojm\u00eb se zbatimi i Ligjit p\u00ebr Kujdesin Sh\u00ebndet\u00ebsor n\u00eb Republik\u00ebn e Shqip\u00ebris\u00eb detyron institucionet sh\u00ebndet\u00ebsore si Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d t\u2019u sigurojn\u00eb pacient\u00ebve sh\u00ebrbim cil\u00ebsor t\u00eb vazhduesh\u00ebm dhe n\u00eb p\u00ebrputhje me protokollet e miratuara. M\u00eb shum\u00eb se nj\u00eb her\u00eb TFL e ka ngritur z\u00ebrin n\u00eb mb\u00ebshtetje t\u00eb t\u00eb drejtave t\u00eb pacient\u00ebve p\u00ebr sh\u00ebrbim cil\u00ebsor dhe ka denoncuar institucionet p\u00ebrgjegj\u00ebse p\u00ebr munges\u00ebn e cil\u00ebsis\u00eb n\u00eb sh\u00ebrbime. Kauzat e pacient\u00ebve p\u00ebr mjekim t\u00eb drejt\u00eb dhe t\u00eb bazuar n\u00eb protokolle, Shoqata Together for Life i ka ndjekur n\u00eb t\u00eb gjitha instancat, nga QSUNT, Ministria e Sh\u00ebndet\u00ebsis\u00eb, Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi dhe deri n\u00eb Gjykat\u00eb. Tashm\u00eb jan\u00eb disa \u00e7\u00ebshtje t\u00eb fituara n\u00eb gjykat\u00eb ndaj Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb, e cila \u00ebsht\u00eb detyruar jo vet\u00ebm t\u00eb siguroj\u00eb medikamentet e munguara p\u00ebr pacient\u00eb me talasemi dhe me kancer gjiri, por edhe t\u2019i d\u00ebmshp\u00ebrblej\u00eb ata p\u00ebr d\u00ebmin shkaktuar sh\u00ebndetit t\u00eb tyre si pasoj\u00eb e munges\u00ebs s\u00eb trajtimit t\u00eb duhur. (https:\/\/mailchi.mp\/b0e42dfc9db4\/the-court-compensates-the-patient-with-hemophilia-together-for-life-represented-the-case-in-trial-2124509; https:\/\/www.togetherforlife.org.al\/en\/tfl-fiton-betejen-e-pare-gjyqesore-ne-mbrojtjen-e-pacienteve\/)  TFL i b\u00ebn thirrje Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe n\u00eb ve\u00e7anti ministres Albana Ko\u00e7iu q\u00eb t\u00eb nd\u00ebrhyj\u00eb menj\u00ebher\u00eb p\u00ebr t\u00eb adresuar k\u00ebt\u00eb situat\u00eb kritike dhe p\u00ebr t\u00eb marr\u00eb masa q\u00eb garantojn\u00eb q\u00eb asnj\u00eb pacient t\u00eb mos p\u00ebrballet me nd\u00ebrprerje t\u00eb trajtimit p\u00ebr shkak t\u00eb munges\u00ebs s\u00eb medikamenteve. P\u00ebr m\u00eb tep\u00ebr, k\u00ebrkojm\u00eb q\u00eb t\u00eb kryhet nj\u00eb hetim i plot\u00eb p\u00ebr t\u00eb p\u00ebrcaktuar arsyet e munges\u00ebs dhe t\u00eb sigurohet q\u00eb nj\u00eb situat\u00eb e till\u00eb t\u00eb mos p\u00ebrs\u00ebritet n\u00eb t\u00eb ardhmen. Gjithashtu, Together for […]<\/p>\n","protected":false},"author":2,"featured_media":2692,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[67,68],"tags":[],"class_list":["post-2691","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-denoncime","category-lajme"],"yoast_head":"\nAlarm! Pacient\u00ebt me leukemi dhe s\u00ebmundje terminale, me mungesa t\u00eb theksuara mjekimi! - Together Against Corruption<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/old.transparency.com.al\/en\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Alarm! Pacient\u00ebt me leukemi dhe s\u00ebmundje terminale, me mungesa t\u00eb theksuara mjekimi! - Together Against Corruption\" \/>\n<meta property=\"og:description\" content=\"Shoqata \u201cTogether for Life\u201d \u00ebsht\u00eb p\u00ebrballur dit\u00ebt e fundit me nj\u00eb fluks ankesash p\u00ebr munges\u00ebn e  mjekimit sipas protokolleve nga pacient\u00ebt q\u00eb vuajn\u00eb nga s\u00ebmundje t\u00eb r\u00ebnda si leukemi dhe s\u00ebmundje t\u00eb tjera tumorale. Pas marrjes s\u00eb ankesave, TFL nisi verifikimin n\u00eb terren t\u00eb situat\u00ebs, ku u njoh me nj\u00eb gjendje alarmante nga mungesa e barnave jetike p\u00ebr s\u00ebmundje t\u00eb r\u00ebnda, t\u00eb cilat duhet t\u00eb sigurohen dhe\/ ose rimbursohen nga sistemi sh\u00ebndet\u00ebsor publik. \u201cN\u00ebna ime vuan nga leukemia dhe nd\u00ebr t\u00eb tjera trajtohet me preparatin Tasigna. Ky lloj ila\u00e7i \u00ebsht\u00eb jet\u00ebsor p\u00ebr t\u00eb dhe nuk mund t\u00eb mungoj\u00eb m\u00eb shume se 1 jav\u00eb, ndryshe gjendja p\u00ebrkeq\u00ebsohet dhe ajo rrezikon jet\u00ebn. Na informuan q\u00eb medikamenti mungon dhe askush nuk p\u00ebrgjigjet se kur do t\u00eb vij\u00eb\u201d, deklaroi p\u00ebr TFL familjari i nj\u00eb pacienti. Munges\u00ebn e k\u00ebtij preparati e kan\u00eb denoncuar edhe pacient\u00eb t\u00eb tjer\u00eb me leukemi, t\u00eb cil\u00ebt jan\u00eb paraqitur k\u00ebto dit\u00eb pran\u00eb Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe jan\u00eb p\u00ebrballur me k\u00ebt\u00eb munges\u00eb. P\u00ebr pacient\u00ebt \u00ebsht\u00eb e pamundur ta sigurojn\u00eb vet\u00eb k\u00ebt\u00eb bar, i cili, jo vet\u00ebm \u00ebsht\u00eb shum\u00eb i kushtuesh\u00ebm, por edhe nuk gjendet n\u00eb asnj\u00eb farmaci tjet\u00ebr p\u00ebrve\u00e7 asaj spitalore, q\u00eb duhet t\u2019ua v\u00ebr\u00eb n\u00eb dispozicion falas t\u00eb s\u00ebmur\u00ebve. Po ashtu, shum\u00eb shqet\u00ebsuese paraqitet edhe gjendja e pacient\u00ebve q\u00eb vuajn\u00eb nga s\u00ebmundje tumorale, t\u00eb cil\u00ebt prej jav\u00ebsh po p\u00ebrballen me munges\u00ebn e barnave kryesore, si fulvestrnt, gemzar dhe paclitaxel. TFL ngre alarmin p\u00ebr k\u00ebt\u00eb situat\u00eb, pasi mungesa e trajtimit me medikamentet e duhura sipas protokolleve t\u00eb pacient\u00ebve me s\u00ebmundje terminale rrezikon seriozisht jet\u00ebn e  tyre, dhe k\u00ebrkon me forc\u00eb marrjen e masave t\u00eb menj\u00ebhershme p\u00ebr sigurimin e medikamenteve dhe trajtimin e pacient\u00ebve sipas protokolleve. Duam t\u00eb theksojm\u00eb se zbatimi i Ligjit p\u00ebr Kujdesin Sh\u00ebndet\u00ebsor n\u00eb Republik\u00ebn e Shqip\u00ebris\u00eb detyron institucionet sh\u00ebndet\u00ebsore si Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d t\u2019u sigurojn\u00eb pacient\u00ebve sh\u00ebrbim cil\u00ebsor t\u00eb vazhduesh\u00ebm dhe n\u00eb p\u00ebrputhje me protokollet e miratuara. M\u00eb shum\u00eb se nj\u00eb her\u00eb TFL e ka ngritur z\u00ebrin n\u00eb mb\u00ebshtetje t\u00eb t\u00eb drejtave t\u00eb pacient\u00ebve p\u00ebr sh\u00ebrbim cil\u00ebsor dhe ka denoncuar institucionet p\u00ebrgjegj\u00ebse p\u00ebr munges\u00ebn e cil\u00ebsis\u00eb n\u00eb sh\u00ebrbime. Kauzat e pacient\u00ebve p\u00ebr mjekim t\u00eb drejt\u00eb dhe t\u00eb bazuar n\u00eb protokolle, Shoqata Together for Life i ka ndjekur n\u00eb t\u00eb gjitha instancat, nga QSUNT, Ministria e Sh\u00ebndet\u00ebsis\u00eb, Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi dhe deri n\u00eb Gjykat\u00eb. Tashm\u00eb jan\u00eb disa \u00e7\u00ebshtje t\u00eb fituara n\u00eb gjykat\u00eb ndaj Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb, e cila \u00ebsht\u00eb detyruar jo vet\u00ebm t\u00eb siguroj\u00eb medikamentet e munguara p\u00ebr pacient\u00eb me talasemi dhe me kancer gjiri, por edhe t\u2019i d\u00ebmshp\u00ebrblej\u00eb ata p\u00ebr d\u00ebmin shkaktuar sh\u00ebndetit t\u00eb tyre si pasoj\u00eb e munges\u00ebs s\u00eb trajtimit t\u00eb duhur. (https:\/\/mailchi.mp\/b0e42dfc9db4\/the-court-compensates-the-patient-with-hemophilia-together-for-life-represented-the-case-in-trial-2124509; https:\/\/www.togetherforlife.org.al\/en\/tfl-fiton-betejen-e-pare-gjyqesore-ne-mbrojtjen-e-pacienteve\/)  TFL i b\u00ebn thirrje Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe n\u00eb ve\u00e7anti ministres Albana Ko\u00e7iu q\u00eb t\u00eb nd\u00ebrhyj\u00eb menj\u00ebher\u00eb p\u00ebr t\u00eb adresuar k\u00ebt\u00eb situat\u00eb kritike dhe p\u00ebr t\u00eb marr\u00eb masa q\u00eb garantojn\u00eb q\u00eb asnj\u00eb pacient t\u00eb mos p\u00ebrballet me nd\u00ebrprerje t\u00eb trajtimit p\u00ebr shkak t\u00eb munges\u00ebs s\u00eb medikamenteve. P\u00ebr m\u00eb tep\u00ebr, k\u00ebrkojm\u00eb q\u00eb t\u00eb kryhet nj\u00eb hetim i plot\u00eb p\u00ebr t\u00eb p\u00ebrcaktuar arsyet e munges\u00ebs dhe t\u00eb sigurohet q\u00eb nj\u00eb situat\u00eb e till\u00eb t\u00eb mos p\u00ebrs\u00ebritet n\u00eb t\u00eb ardhmen. Gjithashtu, Together for […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/old.transparency.com.al\/en\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/\" \/>\n<meta property=\"og:site_name\" content=\"Together Against Corruption\" \/>\n<meta property=\"article:published_time\" content=\"2024-08-09T14:03:17+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-09T14:03:19+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2024\/08\/fgfg.png\" \/>\n\t<meta property=\"og:image:width\" content=\"415\" \/>\n\t<meta property=\"og:image:height\" content=\"289\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Denisa Canameti\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Denisa Canameti\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\\\/\"},\"author\":{\"name\":\"Denisa Canameti\",\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/#\\\/schema\\\/person\\\/ae75c8e5b0f952c3395c70cf36068f1a\"},\"headline\":\"Alarm! 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Pacient\u00ebt me leukemi dhe s\u00ebmundje terminale, me mungesa t\u00eb theksuara mjekimi! - Together Against Corruption","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/old.transparency.com.al\/en\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/","og_locale":"en_US","og_type":"article","og_title":"Alarm! Pacient\u00ebt me leukemi dhe s\u00ebmundje terminale, me mungesa t\u00eb theksuara mjekimi! - Together Against Corruption","og_description":"Shoqata \u201cTogether for Life\u201d \u00ebsht\u00eb p\u00ebrballur dit\u00ebt e fundit me nj\u00eb fluks ankesash p\u00ebr munges\u00ebn e  mjekimit sipas protokolleve nga pacient\u00ebt q\u00eb vuajn\u00eb nga s\u00ebmundje t\u00eb r\u00ebnda si leukemi dhe s\u00ebmundje t\u00eb tjera tumorale. Pas marrjes s\u00eb ankesave, TFL nisi verifikimin n\u00eb terren t\u00eb situat\u00ebs, ku u njoh me nj\u00eb gjendje alarmante nga mungesa e barnave jetike p\u00ebr s\u00ebmundje t\u00eb r\u00ebnda, t\u00eb cilat duhet t\u00eb sigurohen dhe\/ ose rimbursohen nga sistemi sh\u00ebndet\u00ebsor publik. \u201cN\u00ebna ime vuan nga leukemia dhe nd\u00ebr t\u00eb tjera trajtohet me preparatin Tasigna. Ky lloj ila\u00e7i \u00ebsht\u00eb jet\u00ebsor p\u00ebr t\u00eb dhe nuk mund t\u00eb mungoj\u00eb m\u00eb shume se 1 jav\u00eb, ndryshe gjendja p\u00ebrkeq\u00ebsohet dhe ajo rrezikon jet\u00ebn. Na informuan q\u00eb medikamenti mungon dhe askush nuk p\u00ebrgjigjet se kur do t\u00eb vij\u00eb\u201d, deklaroi p\u00ebr TFL familjari i nj\u00eb pacienti. Munges\u00ebn e k\u00ebtij preparati e kan\u00eb denoncuar edhe pacient\u00eb t\u00eb tjer\u00eb me leukemi, t\u00eb cil\u00ebt jan\u00eb paraqitur k\u00ebto dit\u00eb pran\u00eb Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe jan\u00eb p\u00ebrballur me k\u00ebt\u00eb munges\u00eb. P\u00ebr pacient\u00ebt \u00ebsht\u00eb e pamundur ta sigurojn\u00eb vet\u00eb k\u00ebt\u00eb bar, i cili, jo vet\u00ebm \u00ebsht\u00eb shum\u00eb i kushtuesh\u00ebm, por edhe nuk gjendet n\u00eb asnj\u00eb farmaci tjet\u00ebr p\u00ebrve\u00e7 asaj spitalore, q\u00eb duhet t\u2019ua v\u00ebr\u00eb n\u00eb dispozicion falas t\u00eb s\u00ebmur\u00ebve. Po ashtu, shum\u00eb shqet\u00ebsuese paraqitet edhe gjendja e pacient\u00ebve q\u00eb vuajn\u00eb nga s\u00ebmundje tumorale, t\u00eb cil\u00ebt prej jav\u00ebsh po p\u00ebrballen me munges\u00ebn e barnave kryesore, si fulvestrnt, gemzar dhe paclitaxel. TFL ngre alarmin p\u00ebr k\u00ebt\u00eb situat\u00eb, pasi mungesa e trajtimit me medikamentet e duhura sipas protokolleve t\u00eb pacient\u00ebve me s\u00ebmundje terminale rrezikon seriozisht jet\u00ebn e  tyre, dhe k\u00ebrkon me forc\u00eb marrjen e masave t\u00eb menj\u00ebhershme p\u00ebr sigurimin e medikamenteve dhe trajtimin e pacient\u00ebve sipas protokolleve. Duam t\u00eb theksojm\u00eb se zbatimi i Ligjit p\u00ebr Kujdesin Sh\u00ebndet\u00ebsor n\u00eb Republik\u00ebn e Shqip\u00ebris\u00eb detyron institucionet sh\u00ebndet\u00ebsore si Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d t\u2019u sigurojn\u00eb pacient\u00ebve sh\u00ebrbim cil\u00ebsor t\u00eb vazhduesh\u00ebm dhe n\u00eb p\u00ebrputhje me protokollet e miratuara. M\u00eb shum\u00eb se nj\u00eb her\u00eb TFL e ka ngritur z\u00ebrin n\u00eb mb\u00ebshtetje t\u00eb t\u00eb drejtave t\u00eb pacient\u00ebve p\u00ebr sh\u00ebrbim cil\u00ebsor dhe ka denoncuar institucionet p\u00ebrgjegj\u00ebse p\u00ebr munges\u00ebn e cil\u00ebsis\u00eb n\u00eb sh\u00ebrbime. Kauzat e pacient\u00ebve p\u00ebr mjekim t\u00eb drejt\u00eb dhe t\u00eb bazuar n\u00eb protokolle, Shoqata Together for Life i ka ndjekur n\u00eb t\u00eb gjitha instancat, nga QSUNT, Ministria e Sh\u00ebndet\u00ebsis\u00eb, Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi dhe deri n\u00eb Gjykat\u00eb. Tashm\u00eb jan\u00eb disa \u00e7\u00ebshtje t\u00eb fituara n\u00eb gjykat\u00eb ndaj Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb, e cila \u00ebsht\u00eb detyruar jo vet\u00ebm t\u00eb siguroj\u00eb medikamentet e munguara p\u00ebr pacient\u00eb me talasemi dhe me kancer gjiri, por edhe t\u2019i d\u00ebmshp\u00ebrblej\u00eb ata p\u00ebr d\u00ebmin shkaktuar sh\u00ebndetit t\u00eb tyre si pasoj\u00eb e munges\u00ebs s\u00eb trajtimit t\u00eb duhur. (https:\/\/mailchi.mp\/b0e42dfc9db4\/the-court-compensates-the-patient-with-hemophilia-together-for-life-represented-the-case-in-trial-2124509; https:\/\/www.togetherforlife.org.al\/en\/tfl-fiton-betejen-e-pare-gjyqesore-ne-mbrojtjen-e-pacienteve\/)  TFL i b\u00ebn thirrje Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe n\u00eb ve\u00e7anti ministres Albana Ko\u00e7iu q\u00eb t\u00eb nd\u00ebrhyj\u00eb menj\u00ebher\u00eb p\u00ebr t\u00eb adresuar k\u00ebt\u00eb situat\u00eb kritike dhe p\u00ebr t\u00eb marr\u00eb masa q\u00eb garantojn\u00eb q\u00eb asnj\u00eb pacient t\u00eb mos p\u00ebrballet me nd\u00ebrprerje t\u00eb trajtimit p\u00ebr shkak t\u00eb munges\u00ebs s\u00eb medikamenteve. P\u00ebr m\u00eb tep\u00ebr, k\u00ebrkojm\u00eb q\u00eb t\u00eb kryhet nj\u00eb hetim i plot\u00eb p\u00ebr t\u00eb p\u00ebrcaktuar arsyet e munges\u00ebs dhe t\u00eb sigurohet q\u00eb nj\u00eb situat\u00eb e till\u00eb t\u00eb mos p\u00ebrs\u00ebritet n\u00eb t\u00eb ardhmen. Gjithashtu, Together for […]","og_url":"https:\/\/old.transparency.com.al\/en\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/","og_site_name":"Together Against Corruption","article_published_time":"2024-08-09T14:03:17+00:00","article_modified_time":"2024-08-09T14:03:19+00:00","og_image":[{"width":415,"height":289,"url":"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2024\/08\/fgfg.png","type":"image\/png"}],"author":"Denisa Canameti","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Denisa Canameti","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/old.transparency.com.al\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/#article","isPartOf":{"@id":"https:\/\/old.transparency.com.al\/alarm-pacientet-me-leukemi-dhe-semundje-terminale-me-mungesa-te-theksuara-mjekimi\/"},"author":{"name":"Denisa Canameti","@id":"https:\/\/old.transparency.com.al\/#\/schema\/person\/ae75c8e5b0f952c3395c70cf36068f1a"},"headline":"Alarm! 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