{"id":2599,"date":"2024-05-28T08:47:30","date_gmt":"2024-05-28T08:47:30","guid":{"rendered":"https:\/\/transparency.com.al\/?p=2599"},"modified":"2024-05-28T08:47:32","modified_gmt":"2024-05-28T08:47:32","slug":"hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve","status":"publish","type":"post","link":"https:\/\/old.transparency.com.al\/en\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/","title":{"rendered":"\u201cHemofilia nuk pret zvarritjen e tenderave\u201d, jeta e pacient\u00ebve n\u00eb dor\u00eb t\u00eb donacioneve"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Besarti dhe Ervini, dy v\u00ebllez\u00ebr 18 dhe 20 vje\u00e7, vuajn\u00eb q\u00eb n\u00eb lindje nga hemofilia, nj\u00eb \u00e7rregullim gjenetik i trash\u00ebguar i gjakut. S\u00ebmundja i detyron q\u00eb \u00e7do jav\u00eb t\u00eb marrin mjekimin me faktor\u00eb t\u00eb koagulimit (mpikjes) t\u00eb gjakut.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por dy t\u00eb rinjt\u00eb rrezikojn\u00eb t\u00eb invalidizohen, pasi ky mjekim mungon her\u00eb pas here n\u00eb QSUT. Medikamenti ishte n\u00eb munges\u00eb edhe n\u00eb momentin q\u00eb Citizens i takoi n\u00eb muajin mars, ndaj ata po p\u00ebrdornin z\u00ebvend\u00ebsues p\u00ebr Faktorin.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>Por kjo nuk i b\u00ebn pun\u00eb, nuk \u00ebsht\u00eb doza q\u00eb i duhet djemve\u201d,<\/em>&nbsp;thot\u00eb Qerimi, babai i dy djemve, teksa na tregon kutit\u00eb e medikamentit z\u00ebvend\u00ebsues q\u00eb i ka dh\u00ebn\u00eb farmacia.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/citizens.al\/wp-content\/uploads\/2024\/05\/Qerim-hemofilia-pacient-faktor-1024x576.jpg\" alt=\"Qerim Qerimi, babai i dy femijeve me hemofili\" class=\"wp-image-53823\"\/><figcaption class=\"wp-element-caption\"><em>Qerim Qerimi, babai i dy f\u00ebmij\u00ebve me hemofili<\/em><\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Hemofilia \u00ebsht\u00eb nj\u00eb \u00e7rregullim i mpiksjes s\u00eb gjakut, kur ka munges\u00eb t\u00eb faktorit 8 ose 9. N\u00ebse pacient\u00ebt me hemofili nuk e marrin faktorin z\u00ebvend\u00ebsues q\u00eb mungon, ata kan\u00eb probleme me gjakderdhjen, krijojn\u00eb hematoma e mund t\u00eb \u00e7oj\u00eb deri n\u00eb invalidizim.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cJep pasoja, nuk ndalon hemorragjia dhe ata nisin t\u00eb invalidizohen. Nj\u00ebri prej djemve ka nisur\u201d,<\/em>&nbsp;shton m\u00eb tej ai.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">N\u00eb Shqip\u00ebri zyrtarisht mjekimi me faktor\u00ebt 8 dhe 9 ofrohet nga shteti, por pacient\u00ebt rr\u00ebfejn\u00eb se her\u00eb pas here p\u00ebrballen me mungesa.&nbsp; &nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Besarti ka nisur t\u00eb shfaq\u00eb probleme tek nj\u00ebri krah dhe hematoma \u00ebsht\u00eb p\u00ebrkeq\u00ebsuar, duke e rrezikuar at\u00eb t\u00eb invalidizohet.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/citizens.al\/wp-content\/uploads\/2024\/05\/ilaci-jo-Faktor-hemofilia-1024x577.jpg\" alt=\"\" class=\"wp-image-53824\"\/><figcaption class=\"wp-element-caption\"><em>Qerimi mban n\u00eb dor\u00eb ilacin z\u00ebvend\u00ebsues t\u00eb Faktorit 8<\/em><\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>F\u00ebmij\u00ebt duhet ta marrin sa her\u00eb t\u00eb ken\u00eb nevoj\u00eb Faktorin, dhe un\u00eb duhet ta kem gjendje n\u00eb sht\u00ebpi n\u00eb rast hemorragjie<\/em>\u201d, shprehet Qerimi, por ai pranon se disa her\u00eb n\u00eb farmacin\u00eb e QSUT-s\u00eb i thon\u00eb se&nbsp;<em>\u201cka mungesa\u201d<\/em>&nbsp;dhe nuk ka mundur t\u00eb marr\u00eb doz\u00ebn e rekomanduar nga mjeku.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Q\u00eb prej dh\u00ebnies me koncension t\u00eb laboratorit t\u00eb analizave t\u00eb QSUT-s\u00eb n\u00eb vitin 2020, k\u00ebtyre pacient\u00ebve iu \u00ebsht\u00eb mohuar edhe b\u00ebrja e analiz\u00ebs inhibitore, nj\u00eb ekzaminim q\u00eb tregon n\u00ebse trupi \u00ebsht\u00eb ngopur me nj\u00eb medikament dhe duhet p\u00ebrdorur nj\u00eb ila\u00e7 tjet\u00ebr.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cBashk\u00ebpunonim shum\u00eb mir\u00eb me laboratorin, por m\u00eb pas u dha me koncesion dhe tani nuk kemi m\u00eb bashk\u00ebpunim<\/em>\u201d, \u2013 thot\u00eb Vera Minga, drejtuese e Shoqat\u00ebs s\u00eb Pacient\u00ebve me Hemofili. Sipas saj, pacient\u00ebt mund ta b\u00ebjn\u00eb k\u00ebt\u00eb analiz\u00eb vet\u00ebm n\u00eb privat dhe kushton shum\u00eb.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Laborator\u00ebt ofrojn\u00eb \u00e7mime t\u00eb ndryshme, q\u00eb shpesh jan\u00eb abuzive. Burimet thon\u00eb se testi fillon nga 5000 por mund t\u00eb kushtoj\u00eb dhe mbi 2000 mij lek\u00eb.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk iu p\u00ebrgjigj pyetjes se p\u00ebrse ky ekzaminim nuk ofrohet n\u00eb QSUT dhe as b\u00ebri t\u00eb ditur n\u00ebse kishte ndonj\u00eb politik\u00eb p\u00ebr t\u00eb rimbursuar koston e k\u00ebtij ekzaminimi.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cQ\u00eb prej fillimit t\u00eb zbatimit t\u00eb Kontrat\u00ebs koncesionare, p\u00ebr ofrimin e sh\u00ebrbimit laboratorik, n\u00eb Qendr\u00ebn Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb, ofrohen 164 teste laboratorike p\u00ebr pacient\u00ebt ambulator\u00eb dhe t\u00eb hospitalizuar, t\u00eb cil\u00ebt jan\u00eb parashikuar n\u00eb k\u00ebt\u00eb kontrat\u00eb\u201d<\/em>, thot\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Nga ana tjet\u00ebr koncesioni i Laboratorit \u201cLaboratory Networks\u201d, konfirmoi p\u00ebr Citizens se testet e inhibitoreve p\u00ebr pacient\u00ebt hemofilik\u00eb, nuk b\u00ebjn\u00eb pjes\u00eb n\u00eb testet q\u00eb kryhen aktualisht nga koncensionari.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por kalvari p\u00ebr dy t\u00eb rinjt\u00eb&nbsp;ka vijuar edhe n\u00eb dyert e spitalit. Gjat\u00eb mjekimit Besarti \u00ebsht\u00eb infektuar me Hepatit C dhe Faktori nuk \u00ebsht\u00eb i vetmi mjekim q\u00eb i mungon atij.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>Un\u00eb kam munges\u00eb p\u00ebr trajtimin e hepatitit. Kam marr\u00eb rekomandime p\u00ebr mjekimin e hepatitit dhe nuk kam marr\u00eb asnj\u00eb p\u00ebrgjigje\u201d,<\/em>&nbsp;tregon i revoltuar Qerimi, duke sqaruar se ka shkuar n\u00eb Ministri t\u00eb Sh\u00ebndet\u00ebsis\u00eb p\u00ebr k\u00ebt\u00eb rast.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>Kemi nevoj\u00eb p\u00ebr kur\u00ebn p\u00ebr hepatitin, kan\u00eb nisur shqet\u00ebsimet e hepatit. F\u00ebmija \u00ebsht\u00eb shum\u00eb i ndjesh\u00ebm<\/em>\u201d, shton m\u00eb tej babai i t\u00eb rinjve.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Qerimi rr\u00ebfen se iu desh t\u00eb braktiste profesionin si m\u00ebsues p\u00ebr t\u2019u q\u00ebndruar pran\u00eb djemve p\u00ebr shkak t\u00eb nevojave t\u00eb shumta sh\u00ebndet\u00ebsore q\u00eb shfaq\u00ebn.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>N\u00eb fillim kemi zbuluar t\u00eb voglin, n\u00eb mosh\u00ebn&nbsp; 2 vje\u00e7are q\u00eb kishte hemofili dhe pastaj t\u00eb madhin kur ishte 4 vje\u00e7<\/em>\u201d,&nbsp;shpjegon Qerimi teksa futemi brenda n\u00eb sht\u00ebpin\u00eb e tij pran\u00eb shkoll\u00ebs \u201cIbrahim Basha\u201d n\u00eb Kam\u00ebz.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">&nbsp;\u201c<em>Kan\u00eb edhe prapambetje mendore dhe duan kujdestari, \u00ebsht\u00eb shum\u00eb e v\u00ebshtir\u00eb p\u00ebr ne<\/em>\u201d, rr\u00ebfen ish-m\u00ebsuesi, i cili prej vitesh punon n\u00eb nd\u00ebrtim p\u00ebr t\u00eb p\u00ebrballuar fatur\u00ebn financiare t\u00eb trajtimit t\u00eb f\u00ebmij\u00ebve.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ai \u00ebsht\u00eb i vetmi q\u00eb punon n\u00eb familje, t\u00eb ardhurat q\u00eb merr jan\u00eb t\u00eb pamjaftueshme, teksa ndihma sociale q\u00eb merr nga shteti \u00ebsht\u00eb 10 mije lek\u00eb p\u00ebr djalin dhe 10 mij\u00eb p\u00ebr bashk\u00ebshorten si kujdestare.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>Dhe me k\u00ebt\u00eb un\u00eb duhet t\u00eb mbaj familjen<\/em>\u201d, thot\u00eb ai, por thirrja e fundit q\u00eb ka \u00ebsht\u00eb mjekimi i djemve, p\u00ebr hemofilin\u00eb dhe p\u00ebr hepatitin.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>\u201cShqip\u00ebria n\u00eb var\u00ebsi t\u00eb donacioneve\u201d<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Vera Minga, kryetare e Shoqat\u00ebs s\u00eb Hemofilik\u00ebve tregon se aktualisht trajtimi i hemofilok\u00ebve \u00ebsht\u00eb n\u00eb dor\u00eb t\u00eb donacioneve. Ajo rr\u00ebfen se si pas nj\u00eb beteje 10 vje\u00e7are arrit\u00ebn t\u00eb hapnin nj\u00eb qend\u00ebr hemofilie n\u00eb QSUT, por edhe t\u00eb sigurojn\u00eb donacione.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por kjo nuk e ka zgjidhur problemin kryesor t\u00eb pacient\u00ebve, marrjen e Faktorit dhe t\u00eb profilaksis\u00eb.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>Ka munges\u00eb t\u00eb vazhdueshme. Pas shum\u00eb p\u00ebrpjekjesh m\u00eb shoqat\u00ebn, u b\u00eb nj\u00eb marr\u00ebveshje me Italin\u00eb dhe ka vite q\u00eb vjen nj\u00eb donacion\u201d<\/em>, thot\u00eb Vera Minga, por shton se kjo \u00ebsht\u00eb thik\u00eb me dy presa, pasi donatori mund ta nd\u00ebrpres\u00eb kur t\u00eb doj\u00eb k\u00ebt\u00eb marr\u00ebdh\u00ebnie. N\u00ebse nj\u00eb pacient e nis profilaksin\u00eb me k\u00ebt\u00eb trajtim dhe e nd\u00ebrpret, at\u00ebher\u00eb shfaq probleme.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">&nbsp;\u201c<em>Mosmarrja e faktorit ndikon n\u00eb fenomenin e hemoragjis\u00eb dhe gjendja e pacientit p\u00ebrkeq\u00ebsohet\u201d,<\/em>&nbsp;tregon mjeku hematolog Bledi Kalaja i cili punon n\u00eb qend\u00ebr q\u00eb prej 2015.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/citizens.al\/wp-content\/uploads\/2024\/05\/mjeku-bledi-kalaja.jpg\" alt=\"\" class=\"wp-image-53825\"\/><figcaption class=\"wp-element-caption\"><em>Bledi Kalaja, mjek hematolog<\/em><\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Citizens iu drejtua Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale p\u00ebr t\u00eb ditur se sa \u00ebsht\u00eb buxheti n\u00eb dispozicion p\u00ebr pacient\u00ebt me hemofili.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Me nj\u00eb p\u00ebrgjigje t\u00eb vagullt, Ministria thot\u00eb se ka zhvilluar procedur\u00ebn e prokurimit dhe ka lidhur Marr\u00ebveshjen Kuad\u00ebr, p\u00ebr mbulimin e nevojave t\u00eb pacient\u00ebve me k\u00ebt\u00eb patologji.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">P\u00ebrve\u00e7 k\u00ebsaj tha se \u201c<em>ka nj\u00eb marr\u00ebveshje baz\u00eb bilaterale me Ministrin\u00eb Italiane p\u00ebr nj\u00eb sasi donacion ku sasia n\u00eb total p\u00ebr vitin 2023 dhe 2024 ka qen\u00eb 11.250.000 UI<\/em>\u201d, por nuk specifikoi buxhetin q\u00eb ka n\u00eb dispozicion.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ndon\u00ebse i vetmi burim kryesor i p\u00ebr trajtimin e hemofilik\u00ebve mbetet donacioni i qeveris\u00eb italiane, Minga tregon se ngarkesa mbeti n\u00eb dogan\u00eb, pasi drejtoria spitalore nuk paguante transportin p\u00ebr t\u00eb sjell\u00eb donacionin. Si pasoj\u00eb pacient\u00ebt kan\u00eb qen\u00eb p\u00ebr nj\u00eb koh\u00eb t\u00eb gjat\u00eb pa mjekim.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>&nbsp;\u201cDuan t\u2019ua sjell\u00ebsh n\u00eb der\u00eb\u201d<\/em>, thot\u00eb e revoltuar Minga.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">N\u00eb Republik\u00ebn e Shqip\u00ebris\u00eb t\u00eb regjistruar si pacient\u00eb me hemofili A jan\u00eb 174 pacient\u00eb adult dhe 42 pacient\u00eb t\u00eb mosh\u00ebs pediatrike.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sipas shifrave t\u00eb MSH, rezultojn\u00eb tek pacient\u00ebt adult\u00eb (mbi mosh\u00ebn 18 vje\u00e7): 103 hemofili A, forma e r\u00ebnd\u00eb, 51 pacient\u00eb forma e mesme dhe 20 pacient\u00eb hemofilia A forma e leht\u00eb.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Megjith\u00ebse ka vite q\u00eb luftojn\u00eb p\u00ebr Faktorin, familjar\u00ebt e hemofilik\u00ebve po p\u00ebrballen me neglizhenc\u00ebn e shtetit p\u00ebr ta siguruar.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cNuk ka shum\u00eb q\u00eb un\u00eb isha n\u00eb MSH dhe i thash\u00eb un\u00eb kam arritur n\u00eb konkuzionin q\u00eb ju nuk doni t\u00eb b\u00ebni.&nbsp; Pse nuk e b\u00ebjn\u00eb?<\/em>\u201d, thot\u00eb Minga dhe shton se tashm\u00eb nuk \u00ebsht\u00eb m\u00eb \u00e7\u00ebshtje parash.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">N\u00eb k\u00ebt\u00eb situat\u00eb, nj\u00eb num\u00ebr pacient\u00ebsh kan\u00eb emigruar p\u00ebr shkak t\u00eb s\u00ebmundjes.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cJan\u00eb larguar sepse u rrezikohet jeta, nd\u00ebrsa jasht\u00eb e mbulon shteti. N\u00eb \u00e7do vend t\u00eb bot\u00ebs Faktori mbulohet\u201d<\/em>, tregon Minga.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Minga e ka nisur k\u00ebt\u00eb betej\u00eb kur zbuloi se djali i saj ishte hemofilik.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c<em>Lash \u00e7do gj\u00eb timen dhe iu dedikova vet\u00ebm k\u00ebsaj, por prap\u00eb k\u00ebtu faktori ka munguar gjithmon\u00eb\u201d,<\/em>&nbsp;\u2013 thot\u00eb Minga dhe shton e keqardhur se dhe ajo u detyrua ta d\u00ebrgonte djalin e saj n\u00eb Italia kur ishte 13 vje\u00e7.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cUn\u00eb e d\u00ebrgova n\u00eb shkoll\u00eb, por shkaku ishte s\u00ebmundja, p\u00ebr t\u00eb gjetur nj\u00eb rrug\u00ebzgjidhje\u201d,<\/em>&nbsp;\u2013 rr\u00ebfen ajo duke shtuar se duhet t\u00eb ket\u00eb nj\u00eb fond t\u00eb posac\u00ebm p\u00ebr Hemofilin\u00eb sa m\u00eb her\u00ebt.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>\u201cPacient\u00ebt n\u00eb rrethe n\u00eb m\u00ebshir\u00eb t\u00eb fatit\u201d<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Si pasoj\u00eb e munges\u00ebs s\u00eb Faktorit, pacient\u00ebt q\u00eb jetojn\u00eb larg Tiran\u00ebs jane m\u00eb t\u00eb ekspozuar nga rreziku. Pasi n\u00ebse ata nuk e kan\u00eb gjendje Faktorin dhe udh\u00ebtojn\u00eb me hemoragji deri n\u00eb Tiran\u00eb, kjo i rrezikon deri nga invalidizimi deri n\u00eb fatalitet.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Minga thot\u00eb se hemofilia nuk \u00ebsht\u00eb nj\u00eb s\u00ebmundje q\u00eb pret, tenderat marrin shum\u00eb koh\u00eb, thot\u00eb ajo, por \u201chemofilia nuk pret zvarritjen e tenderave\u201d.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Pas shum\u00eb p\u00ebrpjekjesh ata arrit\u00ebn t\u00eb hapnin nj\u00eb qend\u00ebr hemofilie n\u00eb Tiran\u00eb, por \u201c<em>tani gjith\u00eb Shqip\u00ebria vjen n\u00eb k\u00ebt\u00eb qend\u00ebr\u201d<\/em>, thot\u00eb Minga teksa shton se duhet t\u00eb ket\u00eb qendra t\u00eb tjera atje ku ka mjek hematolog.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cSa t\u00eb vish ti nga Burreli apo Tepelena p\u00ebrshembull n\u00eb Tiran\u00eb ik\u00ebn gjith\u00eb dita por nd\u00ebrkoh\u00eb hermogjia shtohet<\/em>\u201d, thot\u00eb ajo e sqaron se ka rrezik p\u00ebr humbje jet\u00eb.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cN\u00ebse ai nuk ka faktorin dhe t\u00eb udh\u00ebtoj\u00eb me hemoragji \u00ebsht\u00eb shum\u00eb e rrezikshme<\/em>\u201d, shton m\u00eb tej.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Elvin Bylykbashi \u00ebsht\u00eb lindur dhe banon n\u00eb Pogradec. Ai \u00ebsht\u00eb 48 vje\u00e7, p\u00ebr nj\u00eb koh\u00eb t\u00eb gjat\u00eb ka jetuar n\u00eb Tiran\u00eb por prej 4 vitesh \u00ebsht\u00eb kthyer n\u00eb Pogradec.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Edhe pse aktualisht ai nuk ka munges\u00eb t\u00eb Faktorit, ai shpreh shqet\u00ebsimin e munges\u00ebs s\u00eb qendrave n\u00eb rrethe.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cUn\u00eb e kam zgjidhur n\u00eb nj\u00eb form\u00eb se mi merr v\u00ebllai n\u00eb Tiran\u00eb, por n\u00eb rrethe duhet t\u00eb ket\u00eb q\u00ebndra, sepse duhet t\u00eb b\u00ebj\u00eb kontrolle t\u00eb p\u00ebrheshme<\/em>\u201d, thot\u00eb Elvini dhe shton se ka hasur probleme dhe me munges\u00eb t\u00eb infermier\u00ebve.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><em>\u201cK\u00ebtu s\u2019ka infermier\u00eb q\u00eb din\u00eb t\u00eb b\u00ebjn\u00eb k\u00ebt\u00eb injektimin n\u00eb ven\u00eb dhe me zor kam gjetur nj\u00eb infermier q\u00eb di t\u00eb b\u00ebj\u00eb venoz\u00ebn\u201d<\/em>, thot\u00eb Elvini.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Pacient\u00ebt hemofilik jane t\u00eb pamborjutr nga shteti, p\u00ebrpos munges\u00ebs s\u00eb trajtimit ata shprehin nj\u00eb shqet\u00ebsim p\u00ebr ndihm\u00ebn ekonomike.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Edhe Elvini ashtu si Qerimi thot\u00eb se ndihma ekonomike nuk \u00ebsht\u00eb e mjaftueshme.\u201c<em>100 mij\u00eb lek\u00eb n\u00eb muaj marr, nd\u00ebrsa kujdestaria ka qen\u00eb 120 mij\u00eb lek\u00eb dhe ma kan\u00eb hequr<\/em>\u201d, thot\u00eb Elvini dhe shton se k\u00ebto nuk i dalin as p\u00ebr nevojat baz\u00eb.\/<em>Citizens.al <\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Besarti dhe Ervini, dy v\u00ebllez\u00ebr 18 dhe 20 vje\u00e7, vuajn\u00eb q\u00eb n\u00eb lindje nga hemofilia, nj\u00eb \u00e7rregullim gjenetik i trash\u00ebguar i gjakut. S\u00ebmundja i detyron q\u00eb \u00e7do jav\u00eb t\u00eb marrin mjekimin me faktor\u00eb t\u00eb koagulimit (mpikjes) t\u00eb gjakut. Por dy t\u00eb rinjt\u00eb rrezikojn\u00eb t\u00eb invalidizohen, pasi ky mjekim mungon her\u00eb pas here n\u00eb QSUT. Medikamenti ishte n\u00eb munges\u00eb edhe n\u00eb momentin q\u00eb Citizens i takoi n\u00eb muajin mars, ndaj ata po p\u00ebrdornin z\u00ebvend\u00ebsues p\u00ebr Faktorin. \u201cPor kjo nuk i b\u00ebn pun\u00eb, nuk \u00ebsht\u00eb doza q\u00eb i duhet djemve\u201d,&nbsp;thot\u00eb Qerimi, babai i dy djemve, teksa na tregon kutit\u00eb e medikamentit z\u00ebvend\u00ebsues q\u00eb i ka dh\u00ebn\u00eb farmacia. Hemofilia \u00ebsht\u00eb nj\u00eb \u00e7rregullim i mpiksjes s\u00eb gjakut, kur ka munges\u00eb t\u00eb faktorit 8 ose 9. N\u00ebse pacient\u00ebt me hemofili nuk e marrin faktorin z\u00ebvend\u00ebsues q\u00eb mungon, ata kan\u00eb probleme me gjakderdhjen, krijojn\u00eb hematoma e mund t\u00eb \u00e7oj\u00eb deri n\u00eb invalidizim. \u201cJep pasoja, nuk ndalon hemorragjia dhe ata nisin t\u00eb invalidizohen. Nj\u00ebri prej djemve ka nisur\u201d,&nbsp;shton m\u00eb tej ai. N\u00eb Shqip\u00ebri zyrtarisht mjekimi me faktor\u00ebt 8 dhe 9 ofrohet nga shteti, por pacient\u00ebt rr\u00ebfejn\u00eb se her\u00eb pas here p\u00ebrballen me mungesa.&nbsp; &nbsp; Besarti ka nisur t\u00eb shfaq\u00eb probleme tek nj\u00ebri krah dhe hematoma \u00ebsht\u00eb p\u00ebrkeq\u00ebsuar, duke e rrezikuar at\u00eb t\u00eb invalidizohet. \u201cF\u00ebmij\u00ebt duhet ta marrin sa her\u00eb t\u00eb ken\u00eb nevoj\u00eb Faktorin, dhe un\u00eb duhet ta kem gjendje n\u00eb sht\u00ebpi n\u00eb rast hemorragjie\u201d, shprehet Qerimi, por ai pranon se disa her\u00eb n\u00eb farmacin\u00eb e QSUT-s\u00eb i thon\u00eb se&nbsp;\u201cka mungesa\u201d&nbsp;dhe nuk ka mundur t\u00eb marr\u00eb doz\u00ebn e rekomanduar nga mjeku. Q\u00eb prej dh\u00ebnies me koncension t\u00eb laboratorit t\u00eb analizave t\u00eb QSUT-s\u00eb n\u00eb vitin 2020, k\u00ebtyre pacient\u00ebve iu \u00ebsht\u00eb mohuar edhe b\u00ebrja e analiz\u00ebs inhibitore, nj\u00eb ekzaminim q\u00eb tregon n\u00ebse trupi \u00ebsht\u00eb ngopur me nj\u00eb medikament dhe duhet p\u00ebrdorur nj\u00eb ila\u00e7 tjet\u00ebr. \u201cBashk\u00ebpunonim shum\u00eb mir\u00eb me laboratorin, por m\u00eb pas u dha me koncesion dhe tani nuk kemi m\u00eb bashk\u00ebpunim\u201d, \u2013 thot\u00eb Vera Minga, drejtuese e Shoqat\u00ebs s\u00eb Pacient\u00ebve me Hemofili. Sipas saj, pacient\u00ebt mund ta b\u00ebjn\u00eb k\u00ebt\u00eb analiz\u00eb vet\u00ebm n\u00eb privat dhe kushton shum\u00eb. Laborator\u00ebt ofrojn\u00eb \u00e7mime t\u00eb ndryshme, q\u00eb shpesh jan\u00eb abuzive. Burimet thon\u00eb se testi fillon nga 5000 por mund t\u00eb kushtoj\u00eb dhe mbi 2000 mij lek\u00eb. Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk iu p\u00ebrgjigj pyetjes se p\u00ebrse ky ekzaminim nuk ofrohet n\u00eb QSUT dhe as b\u00ebri t\u00eb ditur n\u00ebse kishte ndonj\u00eb politik\u00eb p\u00ebr t\u00eb rimbursuar koston e k\u00ebtij ekzaminimi. \u201cQ\u00eb prej fillimit t\u00eb zbatimit t\u00eb Kontrat\u00ebs koncesionare, p\u00ebr ofrimin e sh\u00ebrbimit laboratorik, n\u00eb Qendr\u00ebn Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb, ofrohen 164 teste laboratorike p\u00ebr pacient\u00ebt ambulator\u00eb dhe t\u00eb hospitalizuar, t\u00eb cil\u00ebt jan\u00eb parashikuar n\u00eb k\u00ebt\u00eb kontrat\u00eb\u201d, thot\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb. Nga ana tjet\u00ebr koncesioni i Laboratorit \u201cLaboratory Networks\u201d, konfirmoi p\u00ebr Citizens se testet e inhibitoreve p\u00ebr pacient\u00ebt hemofilik\u00eb, nuk b\u00ebjn\u00eb pjes\u00eb n\u00eb testet q\u00eb kryhen aktualisht nga koncensionari. Por kalvari p\u00ebr dy t\u00eb rinjt\u00eb&nbsp;ka vijuar edhe n\u00eb dyert e spitalit. Gjat\u00eb mjekimit Besarti \u00ebsht\u00eb infektuar me Hepatit C dhe Faktori nuk \u00ebsht\u00eb i vetmi mjekim q\u00eb i mungon atij. \u201cUn\u00eb kam munges\u00eb p\u00ebr trajtimin e hepatitit. Kam marr\u00eb rekomandime p\u00ebr mjekimin e hepatitit dhe nuk kam marr\u00eb asnj\u00eb p\u00ebrgjigje\u201d,&nbsp;tregon i revoltuar Qerimi, duke sqaruar se ka [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":2600,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[68],"tags":[154,99,84,86,80,155],"class_list":["post-2599","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-lajme","tag-hemofilia","tag-korrupsioni","tag-shendetesia","tag-sistemi-shendetesor","tag-transparence-dhe-llogaridhenie","tag-zvarritja-e-tenderave"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u201cHemofilia nuk pret zvarritjen e tenderave\u201d, jeta e pacient\u00ebve n\u00eb dor\u00eb t\u00eb donacioneve - Together Against Corruption<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/old.transparency.com.al\/en\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u201cHemofilia nuk pret zvarritjen e tenderave\u201d, jeta e pacient\u00ebve n\u00eb dor\u00eb t\u00eb donacioneve - Together Against Corruption\" \/>\n<meta property=\"og:description\" content=\"Besarti dhe Ervini, dy v\u00ebllez\u00ebr 18 dhe 20 vje\u00e7, vuajn\u00eb q\u00eb n\u00eb lindje nga hemofilia, nj\u00eb \u00e7rregullim gjenetik i trash\u00ebguar i gjakut. S\u00ebmundja i detyron q\u00eb \u00e7do jav\u00eb t\u00eb marrin mjekimin me faktor\u00eb t\u00eb koagulimit (mpikjes) t\u00eb gjakut. Por dy t\u00eb rinjt\u00eb rrezikojn\u00eb t\u00eb invalidizohen, pasi ky mjekim mungon her\u00eb pas here n\u00eb QSUT. Medikamenti ishte n\u00eb munges\u00eb edhe n\u00eb momentin q\u00eb Citizens i takoi n\u00eb muajin mars, ndaj ata po p\u00ebrdornin z\u00ebvend\u00ebsues p\u00ebr Faktorin. \u201cPor kjo nuk i b\u00ebn pun\u00eb, nuk \u00ebsht\u00eb doza q\u00eb i duhet djemve\u201d,&nbsp;thot\u00eb Qerimi, babai i dy djemve, teksa na tregon kutit\u00eb e medikamentit z\u00ebvend\u00ebsues q\u00eb i ka dh\u00ebn\u00eb farmacia. Hemofilia \u00ebsht\u00eb nj\u00eb \u00e7rregullim i mpiksjes s\u00eb gjakut, kur ka munges\u00eb t\u00eb faktorit 8 ose 9. N\u00ebse pacient\u00ebt me hemofili nuk e marrin faktorin z\u00ebvend\u00ebsues q\u00eb mungon, ata kan\u00eb probleme me gjakderdhjen, krijojn\u00eb hematoma e mund t\u00eb \u00e7oj\u00eb deri n\u00eb invalidizim. \u201cJep pasoja, nuk ndalon hemorragjia dhe ata nisin t\u00eb invalidizohen. Nj\u00ebri prej djemve ka nisur\u201d,&nbsp;shton m\u00eb tej ai. N\u00eb Shqip\u00ebri zyrtarisht mjekimi me faktor\u00ebt 8 dhe 9 ofrohet nga shteti, por pacient\u00ebt rr\u00ebfejn\u00eb se her\u00eb pas here p\u00ebrballen me mungesa.&nbsp; &nbsp; Besarti ka nisur t\u00eb shfaq\u00eb probleme tek nj\u00ebri krah dhe hematoma \u00ebsht\u00eb p\u00ebrkeq\u00ebsuar, duke e rrezikuar at\u00eb t\u00eb invalidizohet. \u201cF\u00ebmij\u00ebt duhet ta marrin sa her\u00eb t\u00eb ken\u00eb nevoj\u00eb Faktorin, dhe un\u00eb duhet ta kem gjendje n\u00eb sht\u00ebpi n\u00eb rast hemorragjie\u201d, shprehet Qerimi, por ai pranon se disa her\u00eb n\u00eb farmacin\u00eb e QSUT-s\u00eb i thon\u00eb se&nbsp;\u201cka mungesa\u201d&nbsp;dhe nuk ka mundur t\u00eb marr\u00eb doz\u00ebn e rekomanduar nga mjeku. Q\u00eb prej dh\u00ebnies me koncension t\u00eb laboratorit t\u00eb analizave t\u00eb QSUT-s\u00eb n\u00eb vitin 2020, k\u00ebtyre pacient\u00ebve iu \u00ebsht\u00eb mohuar edhe b\u00ebrja e analiz\u00ebs inhibitore, nj\u00eb ekzaminim q\u00eb tregon n\u00ebse trupi \u00ebsht\u00eb ngopur me nj\u00eb medikament dhe duhet p\u00ebrdorur nj\u00eb ila\u00e7 tjet\u00ebr. \u201cBashk\u00ebpunonim shum\u00eb mir\u00eb me laboratorin, por m\u00eb pas u dha me koncesion dhe tani nuk kemi m\u00eb bashk\u00ebpunim\u201d, \u2013 thot\u00eb Vera Minga, drejtuese e Shoqat\u00ebs s\u00eb Pacient\u00ebve me Hemofili. Sipas saj, pacient\u00ebt mund ta b\u00ebjn\u00eb k\u00ebt\u00eb analiz\u00eb vet\u00ebm n\u00eb privat dhe kushton shum\u00eb. Laborator\u00ebt ofrojn\u00eb \u00e7mime t\u00eb ndryshme, q\u00eb shpesh jan\u00eb abuzive. Burimet thon\u00eb se testi fillon nga 5000 por mund t\u00eb kushtoj\u00eb dhe mbi 2000 mij lek\u00eb. Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk iu p\u00ebrgjigj pyetjes se p\u00ebrse ky ekzaminim nuk ofrohet n\u00eb QSUT dhe as b\u00ebri t\u00eb ditur n\u00ebse kishte ndonj\u00eb politik\u00eb p\u00ebr t\u00eb rimbursuar koston e k\u00ebtij ekzaminimi. \u201cQ\u00eb prej fillimit t\u00eb zbatimit t\u00eb Kontrat\u00ebs koncesionare, p\u00ebr ofrimin e sh\u00ebrbimit laboratorik, n\u00eb Qendr\u00ebn Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb, ofrohen 164 teste laboratorike p\u00ebr pacient\u00ebt ambulator\u00eb dhe t\u00eb hospitalizuar, t\u00eb cil\u00ebt jan\u00eb parashikuar n\u00eb k\u00ebt\u00eb kontrat\u00eb\u201d, thot\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb. Nga ana tjet\u00ebr koncesioni i Laboratorit \u201cLaboratory Networks\u201d, konfirmoi p\u00ebr Citizens se testet e inhibitoreve p\u00ebr pacient\u00ebt hemofilik\u00eb, nuk b\u00ebjn\u00eb pjes\u00eb n\u00eb testet q\u00eb kryhen aktualisht nga koncensionari. Por kalvari p\u00ebr dy t\u00eb rinjt\u00eb&nbsp;ka vijuar edhe n\u00eb dyert e spitalit. Gjat\u00eb mjekimit Besarti \u00ebsht\u00eb infektuar me Hepatit C dhe Faktori nuk \u00ebsht\u00eb i vetmi mjekim q\u00eb i mungon atij. \u201cUn\u00eb kam munges\u00eb p\u00ebr trajtimin e hepatitit. 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Together Against Corruption","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/old.transparency.com.al\/en\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/","og_locale":"en_US","og_type":"article","og_title":"\u201cHemofilia nuk pret zvarritjen e tenderave\u201d, jeta e pacient\u00ebve n\u00eb dor\u00eb t\u00eb donacioneve - Together Against Corruption","og_description":"Besarti dhe Ervini, dy v\u00ebllez\u00ebr 18 dhe 20 vje\u00e7, vuajn\u00eb q\u00eb n\u00eb lindje nga hemofilia, nj\u00eb \u00e7rregullim gjenetik i trash\u00ebguar i gjakut. S\u00ebmundja i detyron q\u00eb \u00e7do jav\u00eb t\u00eb marrin mjekimin me faktor\u00eb t\u00eb koagulimit (mpikjes) t\u00eb gjakut. Por dy t\u00eb rinjt\u00eb rrezikojn\u00eb t\u00eb invalidizohen, pasi ky mjekim mungon her\u00eb pas here n\u00eb QSUT. Medikamenti ishte n\u00eb munges\u00eb edhe n\u00eb momentin q\u00eb Citizens i takoi n\u00eb muajin mars, ndaj ata po p\u00ebrdornin z\u00ebvend\u00ebsues p\u00ebr Faktorin. \u201cPor kjo nuk i b\u00ebn pun\u00eb, nuk \u00ebsht\u00eb doza q\u00eb i duhet djemve\u201d,&nbsp;thot\u00eb Qerimi, babai i dy djemve, teksa na tregon kutit\u00eb e medikamentit z\u00ebvend\u00ebsues q\u00eb i ka dh\u00ebn\u00eb farmacia. Hemofilia \u00ebsht\u00eb nj\u00eb \u00e7rregullim i mpiksjes s\u00eb gjakut, kur ka munges\u00eb t\u00eb faktorit 8 ose 9. N\u00ebse pacient\u00ebt me hemofili nuk e marrin faktorin z\u00ebvend\u00ebsues q\u00eb mungon, ata kan\u00eb probleme me gjakderdhjen, krijojn\u00eb hematoma e mund t\u00eb \u00e7oj\u00eb deri n\u00eb invalidizim. \u201cJep pasoja, nuk ndalon hemorragjia dhe ata nisin t\u00eb invalidizohen. Nj\u00ebri prej djemve ka nisur\u201d,&nbsp;shton m\u00eb tej ai. N\u00eb Shqip\u00ebri zyrtarisht mjekimi me faktor\u00ebt 8 dhe 9 ofrohet nga shteti, por pacient\u00ebt rr\u00ebfejn\u00eb se her\u00eb pas here p\u00ebrballen me mungesa.&nbsp; &nbsp; Besarti ka nisur t\u00eb shfaq\u00eb probleme tek nj\u00ebri krah dhe hematoma \u00ebsht\u00eb p\u00ebrkeq\u00ebsuar, duke e rrezikuar at\u00eb t\u00eb invalidizohet. \u201cF\u00ebmij\u00ebt duhet ta marrin sa her\u00eb t\u00eb ken\u00eb nevoj\u00eb Faktorin, dhe un\u00eb duhet ta kem gjendje n\u00eb sht\u00ebpi n\u00eb rast hemorragjie\u201d, shprehet Qerimi, por ai pranon se disa her\u00eb n\u00eb farmacin\u00eb e QSUT-s\u00eb i thon\u00eb se&nbsp;\u201cka mungesa\u201d&nbsp;dhe nuk ka mundur t\u00eb marr\u00eb doz\u00ebn e rekomanduar nga mjeku. Q\u00eb prej dh\u00ebnies me koncension t\u00eb laboratorit t\u00eb analizave t\u00eb QSUT-s\u00eb n\u00eb vitin 2020, k\u00ebtyre pacient\u00ebve iu \u00ebsht\u00eb mohuar edhe b\u00ebrja e analiz\u00ebs inhibitore, nj\u00eb ekzaminim q\u00eb tregon n\u00ebse trupi \u00ebsht\u00eb ngopur me nj\u00eb medikament dhe duhet p\u00ebrdorur nj\u00eb ila\u00e7 tjet\u00ebr. \u201cBashk\u00ebpunonim shum\u00eb mir\u00eb me laboratorin, por m\u00eb pas u dha me koncesion dhe tani nuk kemi m\u00eb bashk\u00ebpunim\u201d, \u2013 thot\u00eb Vera Minga, drejtuese e Shoqat\u00ebs s\u00eb Pacient\u00ebve me Hemofili. Sipas saj, pacient\u00ebt mund ta b\u00ebjn\u00eb k\u00ebt\u00eb analiz\u00eb vet\u00ebm n\u00eb privat dhe kushton shum\u00eb. Laborator\u00ebt ofrojn\u00eb \u00e7mime t\u00eb ndryshme, q\u00eb shpesh jan\u00eb abuzive. Burimet thon\u00eb se testi fillon nga 5000 por mund t\u00eb kushtoj\u00eb dhe mbi 2000 mij lek\u00eb. Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk iu p\u00ebrgjigj pyetjes se p\u00ebrse ky ekzaminim nuk ofrohet n\u00eb QSUT dhe as b\u00ebri t\u00eb ditur n\u00ebse kishte ndonj\u00eb politik\u00eb p\u00ebr t\u00eb rimbursuar koston e k\u00ebtij ekzaminimi. \u201cQ\u00eb prej fillimit t\u00eb zbatimit t\u00eb Kontrat\u00ebs koncesionare, p\u00ebr ofrimin e sh\u00ebrbimit laboratorik, n\u00eb Qendr\u00ebn Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb, ofrohen 164 teste laboratorike p\u00ebr pacient\u00ebt ambulator\u00eb dhe t\u00eb hospitalizuar, t\u00eb cil\u00ebt jan\u00eb parashikuar n\u00eb k\u00ebt\u00eb kontrat\u00eb\u201d, thot\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb. Nga ana tjet\u00ebr koncesioni i Laboratorit \u201cLaboratory Networks\u201d, konfirmoi p\u00ebr Citizens se testet e inhibitoreve p\u00ebr pacient\u00ebt hemofilik\u00eb, nuk b\u00ebjn\u00eb pjes\u00eb n\u00eb testet q\u00eb kryhen aktualisht nga koncensionari. Por kalvari p\u00ebr dy t\u00eb rinjt\u00eb&nbsp;ka vijuar edhe n\u00eb dyert e spitalit. Gjat\u00eb mjekimit Besarti \u00ebsht\u00eb infektuar me Hepatit C dhe Faktori nuk \u00ebsht\u00eb i vetmi mjekim q\u00eb i mungon atij. \u201cUn\u00eb kam munges\u00eb p\u00ebr trajtimin e hepatitit. Kam marr\u00eb rekomandime p\u00ebr mjekimin e hepatitit dhe nuk kam marr\u00eb asnj\u00eb p\u00ebrgjigje\u201d,&nbsp;tregon i revoltuar Qerimi, duke sqaruar se ka [&hellip;]","og_url":"https:\/\/old.transparency.com.al\/en\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/","og_site_name":"Together Against Corruption","article_published_time":"2024-05-28T08:47:30+00:00","article_modified_time":"2024-05-28T08:47:32+00:00","og_image":[{"width":1024,"height":683,"url":"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2024\/05\/Fotolia-Medic-with-tube-of-blood-takes-a-blood-test.-World-hemophilia-day-curlymary-1024x683-1.jpg","type":"image\/jpeg"}],"author":"Denisa Canameti","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Denisa Canameti","Est. reading time":"8 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/old.transparency.com.al\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/#article","isPartOf":{"@id":"https:\/\/old.transparency.com.al\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/"},"author":{"name":"Denisa Canameti","@id":"https:\/\/old.transparency.com.al\/#\/schema\/person\/ae75c8e5b0f952c3395c70cf36068f1a"},"headline":"\u201cHemofilia nuk pret zvarritjen e tenderave\u201d, jeta e pacient\u00ebve n\u00eb dor\u00eb t\u00eb donacioneve","datePublished":"2024-05-28T08:47:30+00:00","dateModified":"2024-05-28T08:47:32+00:00","mainEntityOfPage":{"@id":"https:\/\/old.transparency.com.al\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/"},"wordCount":1808,"image":{"@id":"https:\/\/old.transparency.com.al\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/#primaryimage"},"thumbnailUrl":"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2024\/05\/Fotolia-Medic-with-tube-of-blood-takes-a-blood-test.-World-hemophilia-day-curlymary-1024x683-1.jpg","keywords":["hemofilia","korrupsioni","shendetesia","sistemi shendetesor","transparence dhe llogaridhenie","zvarritja e tenderave"],"articleSection":["Lajme"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/old.transparency.com.al\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/","url":"https:\/\/old.transparency.com.al\/hemofilia-nuk-pret-zvarritjen-e-tenderave-jeta-e-pacienteve-ne-dore-te-donacioneve\/","name":"\u201cHemofilia nuk pret zvarritjen e tenderave\u201d, jeta e pacient\u00ebve n\u00eb dor\u00eb t\u00eb donacioneve - 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