{"id":1969,"date":"2022-05-10T12:23:27","date_gmt":"2022-05-10T12:23:27","guid":{"rendered":"https:\/\/transparency.com.al\/?p=1969"},"modified":"2022-05-10T12:24:15","modified_gmt":"2022-05-10T12:24:15","slug":"tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende","status":"publish","type":"post","link":"https:\/\/old.transparency.com.al\/en\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/","title":{"rendered":"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb"},"content":{"rendered":"
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Mungesa e barnave n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb, Pediatrike n\u00eb QSUNT, ka sjell\u00eb si pasoj\u00eb diskriminimin e f\u00ebmij\u00ebve me leucemi<\/strong>, e konstatuar me Vendimin Nr. 161, Dat\u00eb 01\/09\/ 2021, nga Komisioneri p\u00ebr Mbrojtjen Kund\u00ebr Diskriminimit<\/strong> (KMD).<\/p>\n\n\n\n

Pas nj\u00eb pune t\u00eb gjat\u00eb n\u00eb terren, prej m\u00eb shum\u00eb se 6 muajsh, me komunikime t\u00eb vazhdueshme me familjar\u00ebt e pacient\u00ebve t\u00eb vegj\u00ebl me leucemi, ku jan\u00eb siguruar fatura dhe receta medikamentesh t\u00eb blera jasht\u00eb spitalit, me kosto t\u00eb larta, dhe pas komunikimeve zyrtare dhe jo zyrtare me institucionet e Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale,  Shoqata \u201cTogether for Life\u201d ka paraqitur nj\u00eb ankes\u00eb pran\u00eb institucionit t\u00eb pavarur KMD ku ka pretenduar diskriminimin e f\u00ebmij\u00ebve t\u00eb s\u00ebmur\u00eb.<\/strong><\/p>\n\n\n\n

Barnat e konstatuara n\u00eb munges\u00eb, sh\u00ebrbejn\u00eb p\u00ebr trajtimin me kimioterapi t\u00eb f\u00ebmij\u00ebve me leucemi. Trajtimi mjek\u00ebsor, n\u00eb \u00e7do rast duhet t\u00eb sigurohet n\u00eb sasin\u00eb, cil\u00ebsin\u00eb dhe koh\u00ebn e duhur. Por, k\u00ebto element\u00eb marrin nj\u00eb r\u00ebnd\u00ebsi akoma m\u00eb thelb\u00ebsore, p\u00ebr sa i p\u00ebrket trajtimit me kimioterapi t\u00eb k\u00ebsaj s\u00ebmundje. Mos marrja n\u00eb doz\u00ebn dhe koh\u00ebn e duhur t\u00eb trajtimit, n\u00eb raport me vulnerabilitetin e s\u00ebmundjes, sjell pasoja t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve dhe ul mund\u00ebsin\u00eb e tyre p\u00ebr t\u2019i mbijetuar k\u00ebsaj s\u00ebmundje.<\/strong><\/p>\n\n\n\n

N\u00eb lidhje me barnat, Metroteksat, Acid Folinic (Leucovorin) dhe Mercaptopurina<\/em>, bazuar n\u00eb informacionin dhe aktet e administruara gjat\u00eb shqyrtimit t\u00eb ankes\u00ebs, rezultoi e provuar se, gjat\u00eb vitit 2020-2021, k\u00ebto barna kan\u00eb qen\u00eb n\u00eb munges\u00eb<\/strong> dhe nuk jan\u00eb ofruar p\u00ebr f\u00ebmij\u00ebt me leucemi q\u00eb trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb.<\/p>\n\n\n\n

Komisioneri ka vler\u00ebsuar se, veprimet dhe mosveprimet<\/strong> e nd\u00ebrmarra nga Qendra Spitalore Universitare N\u00ebn\u00eb Tereza n\u00eb cil\u00ebsin\u00eb e ofruesit t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale, n\u00eb cil\u00ebsin\u00eb e autoritetit m\u00eb t\u00eb lart\u00eb sh\u00ebndet\u00ebsor, e cila ka detyrimin p\u00ebr t\u00eb organizuar dhe mbik\u00ebqyrur ofrimin e kujdesit sh\u00ebndet\u00ebsor, nuk kan\u00eb qen\u00eb aspak efi\u00e7ente dhe efikase,<\/strong> parime k\u00ebto q\u00eb duhet t\u00eb udh\u00ebheqin ofrimin e kujdesit sh\u00ebndet\u00ebsor. Pavar\u00ebsisht nevoj\u00ebs emergjente p\u00ebr sigurimin e k\u00ebtyre barnave<\/strong>, mungesa e t\u00eb cilave sjell\u00eb pasoja shum\u00eb t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve t\u00eb cil\u00ebt vuajn\u00eb nga leucemia.<\/p>\n\n\n\n

D\u00ebshtimi i procedurave t\u00eb prokurimit p\u00ebr barna kaq thelb\u00ebsore p\u00ebr t\u00eb siguruar kujdesin sh\u00ebndet\u00ebsor t\u00eb f\u00ebmij\u00ebve me leucemi, nuk mund t\u00eb sh\u00ebrbej\u00eb si justifikim i aryesh\u00ebm p\u00ebr munges\u00ebn e barnave.
Mungesa e barnave dhe pamund\u00ebsia p\u00ebr sigurimin e tyre nga ana e familjar\u00ebve ose prind\u00ebrve t\u00eb f\u00ebmij\u00ebve, p\u00ebr shkak t\u00eb gjendjes ekonomike, potencialisht ka prekur n\u00eb m\u00ebnyr\u00eb disproporcionale f\u00ebmij\u00ebt q\u00eb vijn\u00eb nga familje t\u00eb varfra apo n\u00eb gjendje jo t\u00eb mir\u00eb ekonomike.<\/p>\n\n\n\n

Leucemia \u00ebsht\u00eb nj\u00eb s\u00ebmundje e r\u00ebnd\u00eb e gjakut, e njohur ndryshe edhe si kanceri ose tumori i gjakut dhe konsiderohet si nj\u00eb nga s\u00ebmundjet e r\u00ebnda t\u00eb gjakut. Nga informacioni dhe aktet e administruara, rezultoi e provuar mungesa e barnave t\u00eb nevojsh\u00ebm<\/strong> p\u00ebr trajtimin e f\u00ebmij\u00ebve me leucemi, t\u00eb cil\u00ebt trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb Pediatrike n\u00eb QSUNT.<\/p>\n\n\n\n

Burimi: Shoqata Together for Life <\/p>","protected":false},"excerpt":{"rendered":"

Mungesa e barnave n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb, Pediatrike n\u00eb QSUNT, ka sjell\u00eb si pasoj\u00eb diskriminimin e f\u00ebmij\u00ebve me leucemi, e konstatuar me Vendimin Nr. 161, Dat\u00eb 01\/09\/ 2021, nga Komisioneri p\u00ebr Mbrojtjen Kund\u00ebr Diskriminimit (KMD). Pas nj\u00eb pune t\u00eb gjat\u00eb n\u00eb terren, prej m\u00eb shum\u00eb se 6 muajsh, me komunikime t\u00eb vazhdueshme me familjar\u00ebt e pacient\u00ebve t\u00eb vegj\u00ebl me leucemi, ku jan\u00eb siguruar fatura dhe receta medikamentesh t\u00eb blera jasht\u00eb spitalit, me kosto t\u00eb larta, dhe pas komunikimeve zyrtare dhe jo zyrtare me institucionet e Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale,  Shoqata \u201cTogether for Life\u201d ka paraqitur nj\u00eb ankes\u00eb pran\u00eb institucionit t\u00eb pavarur KMD ku ka pretenduar diskriminimin e f\u00ebmij\u00ebve t\u00eb s\u00ebmur\u00eb. Barnat e konstatuara n\u00eb munges\u00eb, sh\u00ebrbejn\u00eb p\u00ebr trajtimin me kimioterapi t\u00eb f\u00ebmij\u00ebve me leucemi. Trajtimi mjek\u00ebsor, n\u00eb \u00e7do rast duhet t\u00eb sigurohet n\u00eb sasin\u00eb, cil\u00ebsin\u00eb dhe koh\u00ebn e duhur. Por, k\u00ebto element\u00eb marrin nj\u00eb r\u00ebnd\u00ebsi akoma m\u00eb thelb\u00ebsore, p\u00ebr sa i p\u00ebrket trajtimit me kimioterapi t\u00eb k\u00ebsaj s\u00ebmundje. Mos marrja n\u00eb doz\u00ebn dhe koh\u00ebn e duhur t\u00eb trajtimit, n\u00eb raport me vulnerabilitetin e s\u00ebmundjes, sjell pasoja t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve dhe ul mund\u00ebsin\u00eb e tyre p\u00ebr t\u2019i mbijetuar k\u00ebsaj s\u00ebmundje. N\u00eb lidhje me barnat, Metroteksat, Acid Folinic (Leucovorin) dhe Mercaptopurina, bazuar n\u00eb informacionin dhe aktet e administruara gjat\u00eb shqyrtimit t\u00eb ankes\u00ebs, rezultoi e provuar se, gjat\u00eb vitit 2020-2021, k\u00ebto barna kan\u00eb qen\u00eb n\u00eb munges\u00eb dhe nuk jan\u00eb ofruar p\u00ebr f\u00ebmij\u00ebt me leucemi q\u00eb trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb. Komisioneri ka vler\u00ebsuar se, veprimet dhe mosveprimet e nd\u00ebrmarra nga Qendra Spitalore Universitare N\u00ebn\u00eb Tereza n\u00eb cil\u00ebsin\u00eb e ofruesit t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale, n\u00eb cil\u00ebsin\u00eb e autoritetit m\u00eb t\u00eb lart\u00eb sh\u00ebndet\u00ebsor, e cila ka detyrimin p\u00ebr t\u00eb organizuar dhe mbik\u00ebqyrur ofrimin e kujdesit sh\u00ebndet\u00ebsor, nuk kan\u00eb qen\u00eb aspak efi\u00e7ente dhe efikase, parime k\u00ebto q\u00eb duhet t\u00eb udh\u00ebheqin ofrimin e kujdesit sh\u00ebndet\u00ebsor. Pavar\u00ebsisht nevoj\u00ebs emergjente p\u00ebr sigurimin e k\u00ebtyre barnave, mungesa e t\u00eb cilave sjell\u00eb pasoja shum\u00eb t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve t\u00eb cil\u00ebt vuajn\u00eb nga leucemia. D\u00ebshtimi i procedurave t\u00eb prokurimit p\u00ebr barna kaq thelb\u00ebsore p\u00ebr t\u00eb siguruar kujdesin sh\u00ebndet\u00ebsor t\u00eb f\u00ebmij\u00ebve me leucemi, nuk mund t\u00eb sh\u00ebrbej\u00eb si justifikim i aryesh\u00ebm p\u00ebr munges\u00ebn e barnave.Mungesa e barnave dhe pamund\u00ebsia p\u00ebr sigurimin e tyre nga ana e familjar\u00ebve ose prind\u00ebrve t\u00eb f\u00ebmij\u00ebve, p\u00ebr shkak t\u00eb gjendjes ekonomike, potencialisht ka prekur n\u00eb m\u00ebnyr\u00eb disproporcionale f\u00ebmij\u00ebt q\u00eb vijn\u00eb nga familje t\u00eb varfra apo n\u00eb gjendje jo t\u00eb mir\u00eb ekonomike. Leucemia \u00ebsht\u00eb nj\u00eb s\u00ebmundje e r\u00ebnd\u00eb e gjakut, e njohur ndryshe edhe si kanceri ose tumori i gjakut dhe konsiderohet si nj\u00eb nga s\u00ebmundjet e r\u00ebnda t\u00eb gjakut. Nga informacioni dhe aktet e administruara, rezultoi e provuar mungesa e barnave t\u00eb nevojsh\u00ebm p\u00ebr trajtimin e f\u00ebmij\u00ebve me leucemi, t\u00eb cil\u00ebt trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb Pediatrike n\u00eb QSUNT. Burimi: Shoqata Together for Life<\/p>","protected":false},"author":2,"featured_media":1970,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[70,67,72,68],"tags":[],"class_list":["post-1969","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-analiza","category-denoncime","category-investigime","category-lajme"],"yoast_head":"\nTFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb - Together Against Corruption<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/old.transparency.com.al\/en\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb - Together Against Corruption\" \/>\n<meta property=\"og:description\" content=\"Mungesa e barnave n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb, Pediatrike n\u00eb QSUNT, ka sjell\u00eb si pasoj\u00eb diskriminimin e f\u00ebmij\u00ebve me leucemi, e konstatuar me Vendimin Nr. 161, Dat\u00eb 01\/09\/ 2021, nga Komisioneri p\u00ebr Mbrojtjen Kund\u00ebr Diskriminimit (KMD). Pas nj\u00eb pune t\u00eb gjat\u00eb n\u00eb terren, prej m\u00eb shum\u00eb se 6 muajsh, me komunikime t\u00eb vazhdueshme me familjar\u00ebt e pacient\u00ebve t\u00eb vegj\u00ebl me leucemi, ku jan\u00eb siguruar fatura dhe receta medikamentesh t\u00eb blera jasht\u00eb spitalit, me kosto t\u00eb larta, dhe pas komunikimeve zyrtare dhe jo zyrtare me institucionet e Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale,  Shoqata \u201cTogether for Life\u201d ka paraqitur nj\u00eb ankes\u00eb pran\u00eb institucionit t\u00eb pavarur KMD ku ka pretenduar diskriminimin e f\u00ebmij\u00ebve t\u00eb s\u00ebmur\u00eb. Barnat e konstatuara n\u00eb munges\u00eb, sh\u00ebrbejn\u00eb p\u00ebr trajtimin me kimioterapi t\u00eb f\u00ebmij\u00ebve me leucemi. Trajtimi mjek\u00ebsor, n\u00eb \u00e7do rast duhet t\u00eb sigurohet n\u00eb sasin\u00eb, cil\u00ebsin\u00eb dhe koh\u00ebn e duhur. Por, k\u00ebto element\u00eb marrin nj\u00eb r\u00ebnd\u00ebsi akoma m\u00eb thelb\u00ebsore, p\u00ebr sa i p\u00ebrket trajtimit me kimioterapi t\u00eb k\u00ebsaj s\u00ebmundje. Mos marrja n\u00eb doz\u00ebn dhe koh\u00ebn e duhur t\u00eb trajtimit, n\u00eb raport me vulnerabilitetin e s\u00ebmundjes, sjell pasoja t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve dhe ul mund\u00ebsin\u00eb e tyre p\u00ebr t\u2019i mbijetuar k\u00ebsaj s\u00ebmundje. N\u00eb lidhje me barnat, Metroteksat, Acid Folinic (Leucovorin) dhe Mercaptopurina, bazuar n\u00eb informacionin dhe aktet e administruara gjat\u00eb shqyrtimit t\u00eb ankes\u00ebs, rezultoi e provuar se, gjat\u00eb vitit 2020-2021, k\u00ebto barna kan\u00eb qen\u00eb n\u00eb munges\u00eb dhe nuk jan\u00eb ofruar p\u00ebr f\u00ebmij\u00ebt me leucemi q\u00eb trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb. Komisioneri ka vler\u00ebsuar se, veprimet dhe mosveprimet e nd\u00ebrmarra nga Qendra Spitalore Universitare N\u00ebn\u00eb Tereza n\u00eb cil\u00ebsin\u00eb e ofruesit t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale, n\u00eb cil\u00ebsin\u00eb e autoritetit m\u00eb t\u00eb lart\u00eb sh\u00ebndet\u00ebsor, e cila ka detyrimin p\u00ebr t\u00eb organizuar dhe mbik\u00ebqyrur ofrimin e kujdesit sh\u00ebndet\u00ebsor, nuk kan\u00eb qen\u00eb aspak efi\u00e7ente dhe efikase, parime k\u00ebto q\u00eb duhet t\u00eb udh\u00ebheqin ofrimin e kujdesit sh\u00ebndet\u00ebsor. Pavar\u00ebsisht nevoj\u00ebs emergjente p\u00ebr sigurimin e k\u00ebtyre barnave, mungesa e t\u00eb cilave sjell\u00eb pasoja shum\u00eb t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve t\u00eb cil\u00ebt vuajn\u00eb nga leucemia. D\u00ebshtimi i procedurave t\u00eb prokurimit p\u00ebr barna kaq thelb\u00ebsore p\u00ebr t\u00eb siguruar kujdesin sh\u00ebndet\u00ebsor t\u00eb f\u00ebmij\u00ebve me leucemi, nuk mund t\u00eb sh\u00ebrbej\u00eb si justifikim i aryesh\u00ebm p\u00ebr munges\u00ebn e barnave.Mungesa e barnave dhe pamund\u00ebsia p\u00ebr sigurimin e tyre nga ana e familjar\u00ebve ose prind\u00ebrve t\u00eb f\u00ebmij\u00ebve, p\u00ebr shkak t\u00eb gjendjes ekonomike, potencialisht ka prekur n\u00eb m\u00ebnyr\u00eb disproporcionale f\u00ebmij\u00ebt q\u00eb vijn\u00eb nga familje t\u00eb varfra apo n\u00eb gjendje jo t\u00eb mir\u00eb ekonomike. Leucemia \u00ebsht\u00eb nj\u00eb s\u00ebmundje e r\u00ebnd\u00eb e gjakut, e njohur ndryshe edhe si kanceri ose tumori i gjakut dhe konsiderohet si nj\u00eb nga s\u00ebmundjet e r\u00ebnda t\u00eb gjakut. Nga informacioni dhe aktet e administruara, rezultoi e provuar mungesa e barnave t\u00eb nevojsh\u00ebm p\u00ebr trajtimin e f\u00ebmij\u00ebve me leucemi, t\u00eb cil\u00ebt trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb Pediatrike n\u00eb QSUNT. Burimi: Shoqata Together for Life\" \/>\n<meta property=\"og:url\" content=\"https:\/\/old.transparency.com.al\/en\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/\" \/>\n<meta property=\"og:site_name\" content=\"Together Against Corruption\" \/>\n<meta property=\"article:published_time\" content=\"2022-05-10T12:23:27+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-05-10T12:24:15+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2022\/05\/pediatria-foto-ivana-dervishi-birn.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1024\" \/>\n\t<meta property=\"og:image:height\" content=\"614\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Denisa Canameti\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Denisa Canameti\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\\\/\"},\"author\":{\"name\":\"Denisa Canameti\",\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/#\\\/schema\\\/person\\\/ae75c8e5b0f952c3395c70cf36068f1a\"},\"headline\":\"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb\",\"datePublished\":\"2022-05-10T12:23:27+00:00\",\"dateModified\":\"2022-05-10T12:24:15+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\\\/\"},\"wordCount\":611,\"image\":{\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/old.transparency.com.al\\\/wp-content\\\/uploads\\\/2022\\\/05\\\/pediatria-foto-ivana-dervishi-birn.jpg\",\"articleSection\":[\"Analiza\",\"Denoncime\",\"Investigime\",\"Lajme\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/old.transparency.com.al\\\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\\\/\",\"url\":\"https:\\\/\\\/old.transparency.com.al\\\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\\\/\",\"name\":\"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb - 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Together Against Corruption","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/old.transparency.com.al\/en\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/","og_locale":"en_US","og_type":"article","og_title":"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb - Together Against Corruption","og_description":"Mungesa e barnave n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb, Pediatrike n\u00eb QSUNT, ka sjell\u00eb si pasoj\u00eb diskriminimin e f\u00ebmij\u00ebve me leucemi, e konstatuar me Vendimin Nr. 161, Dat\u00eb 01\/09\/ 2021, nga Komisioneri p\u00ebr Mbrojtjen Kund\u00ebr Diskriminimit (KMD). Pas nj\u00eb pune t\u00eb gjat\u00eb n\u00eb terren, prej m\u00eb shum\u00eb se 6 muajsh, me komunikime t\u00eb vazhdueshme me familjar\u00ebt e pacient\u00ebve t\u00eb vegj\u00ebl me leucemi, ku jan\u00eb siguruar fatura dhe receta medikamentesh t\u00eb blera jasht\u00eb spitalit, me kosto t\u00eb larta, dhe pas komunikimeve zyrtare dhe jo zyrtare me institucionet e Qendr\u00ebs Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale,  Shoqata \u201cTogether for Life\u201d ka paraqitur nj\u00eb ankes\u00eb pran\u00eb institucionit t\u00eb pavarur KMD ku ka pretenduar diskriminimin e f\u00ebmij\u00ebve t\u00eb s\u00ebmur\u00eb. Barnat e konstatuara n\u00eb munges\u00eb, sh\u00ebrbejn\u00eb p\u00ebr trajtimin me kimioterapi t\u00eb f\u00ebmij\u00ebve me leucemi. Trajtimi mjek\u00ebsor, n\u00eb \u00e7do rast duhet t\u00eb sigurohet n\u00eb sasin\u00eb, cil\u00ebsin\u00eb dhe koh\u00ebn e duhur. Por, k\u00ebto element\u00eb marrin nj\u00eb r\u00ebnd\u00ebsi akoma m\u00eb thelb\u00ebsore, p\u00ebr sa i p\u00ebrket trajtimit me kimioterapi t\u00eb k\u00ebsaj s\u00ebmundje. Mos marrja n\u00eb doz\u00ebn dhe koh\u00ebn e duhur t\u00eb trajtimit, n\u00eb raport me vulnerabilitetin e s\u00ebmundjes, sjell pasoja t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve dhe ul mund\u00ebsin\u00eb e tyre p\u00ebr t\u2019i mbijetuar k\u00ebsaj s\u00ebmundje. N\u00eb lidhje me barnat, Metroteksat, Acid Folinic (Leucovorin) dhe Mercaptopurina, bazuar n\u00eb informacionin dhe aktet e administruara gjat\u00eb shqyrtimit t\u00eb ankes\u00ebs, rezultoi e provuar se, gjat\u00eb vitit 2020-2021, k\u00ebto barna kan\u00eb qen\u00eb n\u00eb munges\u00eb dhe nuk jan\u00eb ofruar p\u00ebr f\u00ebmij\u00ebt me leucemi q\u00eb trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb. Komisioneri ka vler\u00ebsuar se, veprimet dhe mosveprimet e nd\u00ebrmarra nga Qendra Spitalore Universitare N\u00ebn\u00eb Tereza n\u00eb cil\u00ebsin\u00eb e ofruesit t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale, n\u00eb cil\u00ebsin\u00eb e autoritetit m\u00eb t\u00eb lart\u00eb sh\u00ebndet\u00ebsor, e cila ka detyrimin p\u00ebr t\u00eb organizuar dhe mbik\u00ebqyrur ofrimin e kujdesit sh\u00ebndet\u00ebsor, nuk kan\u00eb qen\u00eb aspak efi\u00e7ente dhe efikase, parime k\u00ebto q\u00eb duhet t\u00eb udh\u00ebheqin ofrimin e kujdesit sh\u00ebndet\u00ebsor. Pavar\u00ebsisht nevoj\u00ebs emergjente p\u00ebr sigurimin e k\u00ebtyre barnave, mungesa e t\u00eb cilave sjell\u00eb pasoja shum\u00eb t\u00eb r\u00ebnda n\u00eb sh\u00ebndetin e f\u00ebmij\u00ebve t\u00eb cil\u00ebt vuajn\u00eb nga leucemia. D\u00ebshtimi i procedurave t\u00eb prokurimit p\u00ebr barna kaq thelb\u00ebsore p\u00ebr t\u00eb siguruar kujdesin sh\u00ebndet\u00ebsor t\u00eb f\u00ebmij\u00ebve me leucemi, nuk mund t\u00eb sh\u00ebrbej\u00eb si justifikim i aryesh\u00ebm p\u00ebr munges\u00ebn e barnave.Mungesa e barnave dhe pamund\u00ebsia p\u00ebr sigurimin e tyre nga ana e familjar\u00ebve ose prind\u00ebrve t\u00eb f\u00ebmij\u00ebve, p\u00ebr shkak t\u00eb gjendjes ekonomike, potencialisht ka prekur n\u00eb m\u00ebnyr\u00eb disproporcionale f\u00ebmij\u00ebt q\u00eb vijn\u00eb nga familje t\u00eb varfra apo n\u00eb gjendje jo t\u00eb mir\u00eb ekonomike. Leucemia \u00ebsht\u00eb nj\u00eb s\u00ebmundje e r\u00ebnd\u00eb e gjakut, e njohur ndryshe edhe si kanceri ose tumori i gjakut dhe konsiderohet si nj\u00eb nga s\u00ebmundjet e r\u00ebnda t\u00eb gjakut. Nga informacioni dhe aktet e administruara, rezultoi e provuar mungesa e barnave t\u00eb nevojsh\u00ebm p\u00ebr trajtimin e f\u00ebmij\u00ebve me leucemi, t\u00eb cil\u00ebt trajtohen n\u00eb Sh\u00ebrbimin e Onkohematologjis\u00eb Pediatrike n\u00eb QSUNT. Burimi: Shoqata Together for Life","og_url":"https:\/\/old.transparency.com.al\/en\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/","og_site_name":"Together Against Corruption","article_published_time":"2022-05-10T12:23:27+00:00","article_modified_time":"2022-05-10T12:24:15+00:00","og_image":[{"width":1024,"height":614,"url":"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2022\/05\/pediatria-foto-ivana-dervishi-birn.jpg","type":"image\/jpeg"}],"author":"Denisa Canameti","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Denisa Canameti","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/old.transparency.com.al\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/#article","isPartOf":{"@id":"https:\/\/old.transparency.com.al\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/"},"author":{"name":"Denisa Canameti","@id":"https:\/\/old.transparency.com.al\/#\/schema\/person\/ae75c8e5b0f952c3395c70cf36068f1a"},"headline":"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb","datePublished":"2022-05-10T12:23:27+00:00","dateModified":"2022-05-10T12:24:15+00:00","mainEntityOfPage":{"@id":"https:\/\/old.transparency.com.al\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/"},"wordCount":611,"image":{"@id":"https:\/\/old.transparency.com.al\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/#primaryimage"},"thumbnailUrl":"https:\/\/old.transparency.com.al\/wp-content\/uploads\/2022\/05\/pediatria-foto-ivana-dervishi-birn.jpg","articleSection":["Analiza","Denoncime","Investigime","Lajme"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/old.transparency.com.al\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/","url":"https:\/\/old.transparency.com.al\/tfl-ben-ankim-administrativ-kmd-vendos-se-femijet-me-leucemi-jane-diskriminuar-rende\/","name":"TFL b\u00ebn ankim administrativ, KMD vendos se f\u00ebmij\u00ebt me leucemi jan\u00eb diskriminuar r\u00ebnd\u00eb - 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